Advocacy in disability policy: parents and consumers as advocates.

Abstract

Advocacy for change, which stems from commitment and vision, should be a collaborative process among parents and consumers in partnership with professionals. Using surveys, interactive focus groups, and telephone interviews, we explored the concept and activities of advocacy experienced by parents and individuals with disabilities. Participants were identified through an advocacy and leadership training program, Partners in Policymaking. Advocacy activities and supports and barriers to successful advocacy both for parents and consumers were identified. Suggestions for further research and action were proposed.

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