The Bibbulung Gnarneep Project: practical implementation of guidelines on ethics in Indigenous health research

Sandra Eades · Anne W. Read

38 citations0/0 files storedThe Medical Journal of Australia

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Indigenous Health, Education, and Rights Ethics and bioethics in healthcare Ethics in Clinical Research

Abstract

Human rights and ethical principles justify Indigenous control of health research conducted in Indigenous communities, but also emphasise the need for scientific rigour, knowledge and expertise, much of which currently resides with the non-Indigenous community. In 1994, we began development of the Bibbulung Gnarneep Project on Aboriginal maternal and child health in Perth, Western Australia. We describe the process of developing a protocol to ensure ethical conduct of this research through consultation and negotiation between Aboriginal and non-Aboriginal people involved in the project.

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1988For their own good: Aborigines and government in the southwest of Western Australia, 1900-1940 1999Practicing participatory research in American Indian communities

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2005Moving beyond good intentions: Indigenous participation in Aboriginal and Torres Strait Islander health research 2008Bibbulung Gnarneep (‘solid kid’): Causal pathways to poor birth outcomes in an urban Aboriginal birth cohort 2011Research as intervention:engaging silenced voices 2003Aboriginal and Torres Strait Islander health research and the conduct of longitudinal studies: issues for debate 2017Collective and negotiated design for a clinical trial addressing smoking cessation supports for Aboriginal and Torres Strait Islander mothers in NSW, SA and Qld – developing a pilot study 2008Navigating the process of developing a research project in Aboriginal health 2023Murru Minya–informing the development of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research: a protocol for a national mixed-methods study 2008Wa! Ningeningma arakba akina da! (Oh! Now I know, that's it!)

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