Burdens and difficulties experienced by caregivers of children and adolescents with schizophrenia-spectrum disorders: a qualitative study

Jane Knock · Emily R. Kline · Jason Eric Schiffman · Ashley E. Maynard · Gloria M. Reeves

51 citations0/0 files storedEarly Intervention in Psychiatry

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Family Caregiving in Mental Illness Family and Disability Support Research Family Support in Illness

Abstract

AIM: The purpose of this qualitative study was to investigate the burdens and difficulties associated with the experience of caring for youth with schizophrenia-spectrum disorders. METHODS: Ten caregivers participated in a modified version of the Knowledge about Schizophrenia Illness interview. RESULTS: The most common areas of general difficulties reported by caregivers were emotional burdens and the everyday practical demands and sacrifices required in caring for their dependents. RESULTS also suggested high levels of burden for caregivers concerning difficulties with mental health services. CONCLUSION: Additional work is needed to learn more about the challenges that caregivers of youth with schizophrenia-spectrum disorders are facing, as well as to develop empirically based strategies for helping these caregivers and their dependents.

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2017The Discovery of Grounded Theory 2000Update on Family Psychoeducation for Schizophrenia 2005Family burden in long-term diseases: a comparative study in schizophrenia vs. physical disorders 2007Predictors of family caregivers' burden and quality of life when providing care for a family member with schizophrenia in the People's Republic of China 2003Determinants of burden in caregivers of patients with exacerbating schizophrenia 2005Caregiver burden in mental illness: review of measurement, findings and interventions in 2004–2005 1987Assessing the Functional Value of Relatives' Knowledge about Schizophrenia: a Preliminary Report 2005Quality of life and burden in parents of outpatients with schizophrenia

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