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‘My brother likes meeting new people, but don't ask him any direct questions’: involving adults with autism plus learning disability in a qualitative research project
13 references·0 citing·46 second hop
‘My brother likes meeting new people, but don't ask him any direct questions’: involving adults with autism plus learning disability in a qualitative research project (2013)‘My brother likes meeting new people, but…The Quality of Life of Siblings of Children with Autism Spectrum Disorder (2011)The Quality of Life of Siblin…Siblings and Family Environments of Persons With Autism Spectrum Disorder: A Review of the Literature (2010)Siblings and Family Environme…Siblings of individuals with autism spectrum disorders across the life course (2007)Siblings of individuals with …The Adjustment of Non-Disabled Siblings of Children with Autism (2006)The Adjustment of Non-Disable…Picture this: the use of participatory photographic research methods with people with learning disabilities (2006)Picture this: the use of part…Liberating silent voices – perspectives of children with profound & complex learning needs on inclusion (2006)Liberating silent voices – pe…Involving people with learning disabilities in research: issues and possibilities (2004)Involving people with learnin…Interviewing children and young people with learning disabilities*: guidelines for researchers and multi‐professional practice (2004)Interviewing children and you…Using individualised communication for interviewing people with intellectual disability: a case study of user-centred research (2003)Using individualised communic…Time to make up your mind: why choosing is difficult (2003)Time to make up your mind: wh…Participation in Research by People with Learning Disability: Origins and Issues (1999)Participation in Research by …Some Ethical and Methodological Issues in Research with People with Learning Difficulties (1998)Some Ethical and Methodologic…Sounds of Silence: Narrative research with inarticulate subjects (1996)Sounds of Silence: Narrative …Human inquiry in action : developments in new paradigm research (1988)Changing the Social Relations of Research Production? (1992)Parasites, Pawns and Partners: Disability Research and the Role of Non-Disabled Researchers (1996)Participatory data analysis: a step too far? (2011)Using Qualitative Methods in Research with People Who Have Intellectual Disabilities (2014)Intentionality (1983)Concepts and Issues Related to Choice-Making and Autonomy among Persons with Severe Disabilities (1985)Opportunities to Express Preferences and Make Choices among Students with Severe Disabilities in Classroom Settings (1987)Time for review: supporting the work of an advisory group (2006)On Not Being Noticed: Intellectual Disabilities and the Nonvocal Register (2007)Conducting qualitative research with people withlearning, communication and other disabilities:Methodological challenges (2008)Understanding Disability (1996)Assessing Competence to Consent to Treatment (1998)The Quality of Life of People 12 Years after Resettlement from Long Stay Hospitals: Users' views on their living environment, daily activities and future aspirations (2002)Social Role Valorization: A Proposed New Term for the Principle of Normalization (2011)Living with a disability: a qualitative study of associations between social relations, social participation and quality of life (2018)Emergence of participatory methodology in learning difficulty research: understanding the context (2000)Normalisation, Emancipatory Research and Inclusive Research in Learning Disability (2001)Ethics, Social Research and Consulting with Children and Young People (2003)Methodological Issues in Interviews Involving People With Communication Impairments After Acquired Brain Damage (2007)Children's participation in health research: from objects to agents? (2010)Brief report: Psychological effects of parenting stress on parents of autistic children (1989)Review of Literature Related to the Social, Emotional, and Behavioral Adjustment of Siblings of Individuals with Autism Spectrum Disorder (2009)Families with Children Who Have Autism Spectrum Disorders: Stress and Support (2010)Family-focused autism spectrum disorder research: A review of the utility of family systems approaches (2013)Research Methods and Organization Studies (1991)The Social Model of Disability and the Disappearing Body: Towards a sociology of impairment (1997)Research Methods and Organization Studies (2003)Modifying the Diary Interview Method to Research the Lives of People With Dementia (2012)The use of photovoice with people with intellectual disabilities: reflections, challenges and opportunities (2014)Successful interviews with people with intellectual disability (2017)The CES-D Scale (1977)Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Text Revision (DSM-IV-TR) (2000)“I Like That He Always Shows Who He Is”: The perceptions and experiences of siblings with a brother with autism spectrum disorder (2009)Diagnostic and Statistical Manual of Mental Disorders (2013)The Discovery of Grounded Theory: Strategies for Qualitative Research (1968)InterViews: An introduction to qualitative research interviewing (1997)Research ethics and the use of visual images in research with people with intellectual disability (2009)Nothing About Us Without Us: Does Action Research in Developmental Disabilities Research Measure Up? (2014)The Key Informant Technique: A Nonethnographic Application (1957)Narrative Analysis: Oral Versions of Personal Experience1 (1997)Conducting Qualitative Interview Research With People With Expressive Language Difficulties (2006)Silence in the Context of ‘Child Voice’ (2009)Pupils' views on inclusion: moderate learning difficulties and bullying in mainstream and special schools (2004)The Ethical Maze (2006)Doing research inclusively: bridges to multiple possibilities in inclusive research (2013)
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References

  • 1996Sounds of Silence: Narrative research with inarticulate subjects327 cited
  • 1998Some Ethical and Methodological Issues in Research with People with Learning Difficulties316 cited
  • 2007Siblings of individuals with autism spectrum disorders across the life course244 cited
  • 2006The Adjustment of Non-Disabled Siblings of Children with Autism243 cited
  • 2004Interviewing children and young people with learning disabilities*: guidelines for researchers and multi‐professional practice193 cited
  • 2004Involving people with learning disabilities in research: issues and possibilities189 cited
  • 2006Picture this: the use of participatory photographic research methods with people with learning disabilities168 cited
  • 1999Participation in Research by People with Learning Disability: Origins and Issues141 cited
  • 2003Using individualised communication for interviewing people with intellectual disability: a case study of user-centred research87 cited
  • 2003Time to make up your mind: why choosing is difficult84 cited
  • 2010Siblings and Family Environments of Persons With Autism Spectrum Disorder: A Review of the Literature82 cited
  • 2011The Quality of Life of Siblings of Children with Autism Spectrum Disorder80 cited
  • 2006Liberating silent voices – perspectives of children with profound & complex learning needs on inclusion64 cited

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