YouTube Videos as a Teaching Tool and Patient Resource for Infantile Spasms

Mary Jane Lim Fat · Asif Doja · Nick Barrowman · Erick Sell

114 citations0/0 files storedJournal of Child Neurology

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Social Media in Health Education Epilepsy research and treatment Health Literacy and Information Accessibility

Abstract

The purpose of this study was to assess YouTube videos for their efficacy as a patient resource for infantile spasms. Videos were searched using the terms infantile spasm, spasm, epileptic spasm, and West syndrome. The top 25 videos under each term were selected according to set criteria. Technical quality, diagnosis of infantile spasms, and suitability as a teaching resource were assessed by 2 neurologists using the Medical Video Rating Scale. There were 5858 videos found. Of the 100 top videos, 46% did not meet selection criteria. Mean rating for technical quality was 4.0 of 5 for rater 1 and 3.9 of 5 for rater 2. Raters found 60% and 64% of videos to accurately portray infantile spasms, respectively, with significant agreement (Cohen κ coefficient = 0.75, P < .001). Ten videos were considered excellent examples (grading of 5 of 5) by at least 1 rater. YouTube may be used as an excellent patient resource for infantile spasms if guided search practices are followed.

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2007YouTube as a Source of Information on Immunization: A Content Analysis 2010YouTube As a Source of Information on the H1N1 Influenza Pandemic 2009YouTube as Source of Prostate Cancer Information 2008The Wisdom of Patients: Health Care Meets Online Social Media

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