Article2009

Searching for acceptance: Challenges encountered while raising a child with autism

263 citations0/0 files storedJournal of Intellectual & Developmental Disability

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Family and Disability Support Research Autism Spectrum Disorder Research Child Nutrition and Feeding Issues

Abstract

BACKGROUND: Autism, a severe childhood disorder, affects the family system in dramatic ways. METHOD: Fifty-two parents of children with autism were interviewed to explore their struggles and their successes qualitatively. RESULTS: Five challenges that emerged from these family's experiences were: Development, Questioning, Devastation, Solutions, and Growth. Every parent described the confusion that resulted from their child's behavioural presentation and the feelings of loss and devastation that occurred after discovering their child has autism. Parents, however, were swift and eager to mobilise resources to help their child, sometimes in any possible way. Almost every parent described significant, positive experiences that resulted from raising a child with autism, despite the hardships. CONCLUSIONS: The findings of this study provide important considerations for professionals and families.

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References

2013Diagnostic and Statistical Manual of Mental Disorders 1968The Discovery of Grounded Theory: Strategies for Qualitative Research.1987Family assessment inventories for research and practice 1990Ordinary families, special children: a systems approach to childhood disability 2002Ten years on: a longitudinal study of families of children with autism 1997Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety, and depression among parents of children with autism 2006Immunizations and Autism: A Review of the Literature

Cited by

2016A meta-synthesis on parenting a child with autism 2012Challenges, Coping Strategies, and Unmet Needs of Families with a Child with A utism Spectrum Disorder in G oa, I ndia 2016Stigma, explanatory models and unmet needs of caregivers of children with developmental disorders in a low-income African country: a cross-sectional facility-based survey 2013Family-focused autism spectrum disorder research: A review of the utility of family systems approaches 2011Quality of life: a key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes

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