The role of parent stress and coping and family functioning in parent and child adjustment to Duchenne Muscular Dystrophy

Abstract

This study found 57% of parents of 35 children with Duchenne Muscular Dystrophy (4 to 14 years of age) to have self-reported poor psychological adjustment. The hypothesized mediational variables of parent appraisal of stress, relative use of palliative coping methods, and level of family conflict accounted for 58% of the variance in general distress, 50% in depressive symptoms, and 31% in anxiety symptoms. In terms of parent-reported child adjustment, 89% of the children were classified by parent report as having a behavior problem pattern. The internalizing profile pattern was most frequent (37%). The parent mediational variables accounted for 26% of the variance in parent-reported internalizing behavior problems and 29% in externalizing behavior problems.

Cite this work

No public copy is stored for this record, so only the metadata is cited.

Stored only when both papers are in the corpus — 73 citations exist upstream.

Papers that cite the same references — the relational fallback while embeddings are still backfilling.