Articlebronze2011

Patient Perspective: Choosing or Developing Instruments

John Kirwan · James F. Fries · SARAH E. HEWLETT · Richard H. Osborne

34 citations0/0 files storedThe Journal of Rheumatology

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Psychometric Methodologies and Testing Rheumatoid Arthritis Research and Therapies Health Systems, Economic Evaluations, Quality of Life

Abstract

Previous Outcome Measures in Rheumatology (OMERACT) meetings recognized that patients view outcomes of intervention from a different perspective. This preconference position paper briefly sets out 2 patient-reported outcome (PRO) instrument approaches, the PROMISE computer adaptive testing (CAT) system and development of a rheumatoid arthritis-specific questionnaire to measure fatigue; a tentative proposal for a PRO instrument development pathway is also made.

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2007The Patient-Reported Outcomes Measurement Information System (PROMIS)1998The OMERACT filter for Outcome Measures in Rheumatology.2007OMERACT: An international initiative to improve outcome measurement in rheumatology 2008Evaluation of a preliminary physical function item bank supported the expected advantages of the Patient-Reported Outcomes Measurement Information System (PROMIS)2009Progress in Assessing Physical Function in Arthritis: PROMIS Short Forms and Computerized Adaptive Testing 2009Better assessment of physical function: item improvement is neglected but essential 2006More relevant, precise, and efficient items for assessment of physical function and disability: moving beyond the classic instruments

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2017Asking what matters: The relevance and use of patient‐reported outcome measures that were developed without patient involvement

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