Article2011

Disability Identity of Leaders in the Self-Advocacy Movement

89 citations0/0 files storedIntellectual and developmental disabilities

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Disability Rights and Representation Disability Education and Employment Inclusion and Disability in Education and Sport

Abstract

Life stories and perspectives of leaders in the self-advocacy movement were explored to enhance knowledge about disability identity formation. In-depth qualitative interviews were conducted with 13 leaders in the self-advocacy movement. Five major themes emerged: (a) resistance--claiming personhood and voice; (b) connection with disability community; (c) reclaiming disability and personal transformation; (d) interconnection with broader disability rights movement; and (e) bond with social justice and interdependency.

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References

1994Qualitative Data Analysis: An Expanded Sourcebook 1992Basics of Qualitative Research: Grounded Theory Procedures and Techniques.1998Qualitative inquiry and research design: choosing among five traditions.1993Basics of Qualitative Research: Grounded Theory Procedures and Techniques 2002Qualitative research & evaluation methods 1969Stigma: Notes on the Management of Spoiled Identity 1964Stigma: Notes on the Management of Spoiled Identity.2015Introduction to Qualitative Research Methods: A Guidebook and Resource

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2015Discourses of Disability, Narratives of Community: Reclaiming an Autistic Identity Online 2020The impact of self‐advocacy organizations on the subjective well‐being of people with intellectual disabilities: A systematic review of the literature 2021“I Didn’t Know People With Disabilities Could Grow Up to Be Adults”: Disability History, Curriculum, and Identity in Special Education 2021Service inclusion: the role of disability identity in retail 2015Reflections on being a first generation self-advocate: Belonging, social connections, and doing things that matter

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