Psychological impact of cerebral palsy on families: The African perspective

Olajide Ayinla Olawale · Abraham N Deih · Raphael KK Yaadar

73 citations0/0 files storedJournal of Neurosciences in Rural Practice

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Family and Disability Support Research Nursing care and research Cerebral Palsy and Movement Disorders

Abstract

BACKGROUND: Psychological stress associated with cerebral palsy (CP) is known to be one of the most depressing conditions of families. In the traditional African society, some peculiar factors may contribute to the stress. AIMS: The aims of this study were to identify and describe, from the African perspective, the psychological impact of CP on families and determine the strategies adopted by families in coping with it. SETTINGS AND DESIGN: The study was a cross-sectional descriptive survey conducted in the Physiotherapy Department of a tertiary hospital. MATERIALS AND METHODS: Participants were 52 parents of children with CP. They completed a questionnaire designed to determine the degree of psychological stress on the families and strategies adopted to cope with the stress. STATISTICAL ANALYSIS: Descriptive statistics were used to show responses in graphical formats. RESULTS: Respondents agreed that having adequate knowledge of CP would help them cope well with the demands of taking care of children with CP. 38.5% of respondents said that people in the society accused them of some wrongdoing that has made their children to have CP. Personal problems experienced include loss of job, lack of concentration at work, loss of family joy, and derangement of financial affairs of the family. 26 (50%) of them resort to religious/spiritual intervention as an alternative or complementary mode of treatment for their children while 28% resort to dependence on the extended family system for support. CONCLUSION: Families caring for children with CP generally have a positive attitude towards their children. However, there is need to educate the public on the causes of CP and treatment options available to families.

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References

2005The Health and Well-Being of Caregivers of Children With Cerebral Palsy 2004The Health of Primary Caregivers of Children With Cerebral Palsy: How Does It Compare With That of Other Canadian Caregivers?1982Psychological Distress in Mothers of Disabled Children 2005Assessment of the Quality of Life of Mothers of Children with Cerebral Palsy (Primary Caregivers)2006Perceived stress, perceived social support, and wellbeing among mothers of school‐aged children with cerebral palsy 2011Parenting stress and children with cerebral palsy: a European cross‐sectional survey 2008Stress in parents of children with cerebral palsy: what sources of stress are we talking about?1998Parenting stress among mothers of Malaysian children with cerebral palsy: predictors of child- and parent-related stress

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