Unmet Needs of Families of School‐Aged Children with an Autism Spectrum Disorder

Hilary K. Brown · Helene M. J. Ouellette-Kuntz · Duncan Hunter · Elizabeth A. Kelley · Virginie Cobigo

83 citations0/0 files storedJournal of Applied Research in Intellectual Disabilities

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Family and Disability Support Research Autism Spectrum Disorder Research Child Nutrition and Feeding Issues

Abstract

BACKGROUND: To aid decision making regarding the allocation of limited resources, information is needed on the perceived unmet needs of parents of school-aged children with an autism spectrum disorder. MATERIALS AND METHODS: A cross-sectional survey was conducted of 101 Canadian families of school-aged children with an autism spectrum disorder. RESULTS: Commonly reported unmet needs were for social activities for the child (78.2%), information about services (77.2%) and continuous service provision (74.3%). CONCLUSIONS: This study provides insight into needs which have not been met by the service system. Information about the unmet needs of children with an autism spectrum disorder and their families may help policy makers and service providers to develop resources and services that are responsive to their client group.

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References

2000Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Text Revision (DSM-IV-TR)1988Enabling and empowering families: Principles and guidelines for practice 2005Evidence-Based Practices and Students With Autism Spectrum Disorders 2006Assessing Need for Social Support in Parents of Children with Autism and Down Syndrome 1998Needs assessment: from theory to practice 2003Measuring the Parental, Service and Cost Impacts of Children with Autistic Spectrum Disorder: A Pilot Study 1992Service needs of families of children with severe physical disability 1999Examining the Services Received by Young Children with Autism and Their Families

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