Challenges faced by parents of children diagnosed with autism spectrum disorder

Amanda Ludlow · Charlotte Skelly · Poul Rohleder

352 citations0/0 files storedJournal of Health Psychology

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Family and Disability Support Research Autism Spectrum Disorder Research Family Caregiving in Mental Illness

Abstract

Few studies address the daily challenges faced by parents of children diagnosed with autism spectrum disorder. This article reports on a qualitative interview study with 20 parents exploring their experiences, challenges faced, and what has helped them to cope. A thematic analysis of the data identified five core categories: Dealing with challenging behaviour; dealing with judgements from others; lack of support; impact upon the family; coping and the importance of appropriate support. The findings emphasize where the parents themselves believe they still require additional support. It raises key strategies and resources that parents have found helpful.

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References

2006Using thematic analysis in psychology 2005The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders 2003Pre‐school children with and without developmental delay: behaviour problems and parenting stress over time 2005Systems Analysis of Stress and Positive Perceptions in Mothers and Fathers of Pre-School Children with Autism 2002Examining the Relationship BetWeen Stress and Lack of Social Support in Mothers of Children With Autism 2005Coping strategies in mothers and fathers of preschool and school-age children with autism 2009The SAGE handbook of qualitative research in psychology 2008Living in a World of Our Own: The Experience of Parents Who Have a Child With Autism

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2014Parents’ Experiences of Caring for a Child With Autism Spectrum Disorder 2016A meta-synthesis on parenting a child with autism 2020Stress and emotional wellbeing of parents due to change in routine for children with Autism Spectrum Disorder (ASD) at home during COVID-19 pandemic in Saudi Arabia 2015Understanding carers’ lived experience of stigma: the voice of families with a child on the autism spectrum

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