Articlediamond2012

Self-perceived health-related quality of life of Indian children with specific learning disability

30 citations0/0 files storedJournal of Postgraduate Medicine

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Developmental and Educational Neuropsychology Attention Deficit Hyperactivity Disorder Down syndrome and intellectual disability research

Abstract

BACKGROUND: Specific learning disability (SpLD) often remains undetected, resulting in the afflicted child experiencing chronic poor school performance. AIMS: To measure and analyze the self-perceived health-related quality of life (HRQoL) of children with newly-diagnosed SpLD. SETTINGS AND DESIGN: Cross-sectional questionnaire-based study in our clinic. MATERIALS AND METHODS: From February to December 2008, 150 children consecutively diagnosed as having SpLD were enrolled and their HRQoL documented using the DISABKIDS chronic generic module self-report version instrument. STATISTICAL ANALYSIS: Multiple regression analysis was carried out for determining the 'independent' impact that each of the clinical and socio-demographic variables had on a poor facet score outcome and on a poor total score outcome. RESULTS: Clinically significant deficits were detected in all 6 facets, namely: 'large deficits (effect size ≥-0.8)' in "social exclusion", "emotion", "limitation", "treatment", and "independence"; and 'medium deficit (effect size -0.5 to <-0.8)' in "social inclusion"; and 'large deficit' in "total score". Multivariate analysis revealed that: (i) not belonging to the upper socio-economic strata of society was an independent predictor of a poor "independence" facet outcome (P=0.010, OR=1.99, 95% CI: 1.18 to 3.37); (ii) not having experienced class detainment was an independent predictor of a poor "emotion" facet outcome (P=0.008, OR=3.04, 95% CI: 1.34 to 6.85); (iii) first-born status was an independent predictor of a poor "limitation" facet outcome (P=0.022, OR=2.60, 95% CI: 1.15 to 5.90); and (iv) female gender was an independent predictor of a poor "social exclusion" facet outcome (P=0.024, OR=0.28, 95% CI: 0.09 to 0.85) and a poor "overall health" outcome (P=0.025, OR=0.32, 95% CI: 0.12 to 0.87). CONCLUSIONS: Children with newly-diagnosed SpLD perceive their psychosocial, physical, and overall HRQoL to be significantly compromised.

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References

1995The World Health Organization quality of life assessment (WHOQOL): Position paper from the World Health Organization 2004My Current Thoughts on Coefficient Alpha and Successor Procedures 1998Dyslexia 2003Kuppuswamy’s socioeconomic status scale — A revision 2005Specific learning disability: the invisible handicap.2008Health-related Quality of Life of Children with Newly Diagnosed Specific Learning Disability 2011Does the subjective quality of life of children with specific learning disabilities (SpLD) agree with their parents’ proxy reports?

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2020Personality, Behavior Characteristics, and Life Quality Impact of Children with Dyslexia 2015Is anxiety more common in school students with newly diagnosed specific learning disabilities? A cross-sectional questionnaire-based study in Mumbai, Maharashtra, India 2017Specific learning disability: a 5 year study from India 2019Quality of life of children with poor school performance: association with hearing abilities and behavioral issues 2022Specific Learning Disabilities in India: Current Situation and the Path Ahead

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