Articlebronze2013

Using the NIH Toolbox in special populations

David E. Victorson · Jennifer Jaie Manly · Kathleen Wallner‐Allen · Nathan A. Fox · Christy Purnell · Hugh C. Hendrie +5 more

45 citations0/0 files storedNeurology

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Health Education and Validation Psychometric Methodologies and Testing Health Systems, Economic Evaluations, Quality of Life

Abstract

BACKGROUND: In order to develop health outcomes measures that are relevant and applicable to the general population, it is essential to consider the needs and requirements of special subgroups, such as the young, elderly, disabled, and people of different ethnic and cultural backgrounds, within that population. METHODS: The NIH Toolbox project convened several working groups to address assessment issues for the following subgroups: pediatric, geriatric, cultural, non-English-speaking, and disabled. Each group reviewed all NIH Toolbox instruments in their entirety. RESULTS: Each working group provided recommendations to the scientific study teams regarding instrument content, presentation, and administration. When feasible and appropriate, instruments and administration procedures have been modified in accordance with these recommendations. CONCLUSION: Health outcome measurement can benefit from expert input regarding assessment considerations for special subgroups.

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2003Guidelines on multicultural education, training, research, practice, and organizational change for Psychologists.2005A Comprehensive Method for the Translation and Cross-Cultural Validation of Health Status Questionnaires 1993Developing and evaluating cross-cultural instruments from minimum requirements to optimal models 2010Assessment of neurological and behavioural function: the NIH Toolbox 2006Deconstructing Race and Ethnicity 2008Measurement validity in cross-cultural comparative research 2003Ten Recommendations for Advancing Patient-Centered Outcomes Measurement for Older Persons 1996Culturally Competent Assessment Practice in the United States

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2013NIH Toolbox for Assessment of Neurological and Behavioral Function

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