Identifying Religious and/or Spiritual Perspectives of Adolescents and Young Adults Receiving Blood and Marrow Transplants: A Prospective Qualitative Study

Judith R. Ragsdale · Mary Ann Hegner · Mark A. Mueller · Stella M. Davies

45 citations0/0 files storedTransplantation and Cellular Therapy

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Religion, Spirituality, and Psychology Contemporary Christian Leadership and Education Palliative and Oncologic Care

Abstract

The potential benefits (or detriments) of religious beliefs in adolescent and young adults (AYA) are poorly understood. Moreover, the literature gives little guidance to health care teams or to chaplains about assessing and addressing the spiritual needs of AYA receiving hematopoietic stem cell transplants (HSCT). We used an institutional review board-approved, prospective, longitudinal study to explore the use of religion and/or spirituality (R/S) in AYA HSCT recipients and to assess changes in belief during the transplantation experience. We used the qualitative methodology, grounded theory, to gather and analyze data. Twelve AYA recipients were interviewed within 100 days of receiving HSCT and 6 participants were interviewed 1 year after HSCT; the other 6 participants died. Results from the first set of interviews identified 5 major themes: using R/S to address questions of "why me?" and "what will happen to me;" believing God has a reason; using faith practices; and benefitting from spiritual support people. The second set of interviews resulted in 4 major themes: believing God chose me; affirming that my life has a purpose; receiving spiritual encouragement; and experiencing strengthened faith. We learned that AYA patients were utilizing R/S far more than we suspected and that rather than losing faith in the process of HSCT, they reported using R/S to cope with illness and HSCT and to understand their lives as having special purpose. Our data, supported by findings of adult R/S studies, suggest that professionally prepared chaplains should be proactive in asking AYA patients about their understanding and use of faith, and the data can actively help members of the treatment team understand how AYA are using R/S to make meaning, address fear, and inform medical decisions.

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References

1968The Discovery of Grounded Theory: Strategies for Qualitative Research.1968The Discovery of Grounded Theory; Strategies for Qualitative Research 2000Emerging adulthood: A theory of development from the late teens through the twenties.1998The Psychology of Religion and Coping: Theory Research Practice 2000Conceptualizing Religion and Spirituality: Points of Commonality, Points of Departure 2009Improving the Quality of Spiritual Care as a Dimension of Palliative Care: The Report of the Consensus Conference 2009Provision of Spiritual Care to Patients With Advanced Cancer: Associations With Medical Care and Quality of Life Near Death 2006Religion/spirituality and adolescent health outcomes: a review

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2020Education for professional chaplaincy in the US: mapping current practice in Clinical Pastoral Education (CPE)2018Spirituality in adolescents with cancer 2015Spiritual Well-Being in Hispanic and Non-Hispanic Survivors of Allogeneic Hematopoietic Stem Cell Transplantation 2018Spirituality Experiences in Hemophilia Patients: A Phenomenological Study 2016

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