Spiritual needs and spiritual support preferences of people with end-stage heart failure and their carers: implications for nurse managers

Linda Anne Ross · Jacky Austin

110 citations0/0 files storedJournal of Nursing Management

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Religion, Spirituality, and Psychology Palliative Care and End-of-Life Issues Palliative and Oncologic Care

Abstract

BACKGROUND: Spiritual care is an important element of holistic care but has received little attention within palliative care in end-stage heart failure. AIMS: To identify the spiritual needs and spiritual support preferences of end-stage heart failure patients/carers and to develop spiritual support guidelines locally. METHOD: Semi-structured interviews (totalling 47) at 3-monthly intervals up to 1 year with 16 end-stage heart failure patients/carers. Focus group/consultation with stakeholders. RESULTS: Participants were struggling with spiritual/existential concerns alongside the physical and emotional challenges of their illness. These related to: love/belonging; hope; coping; meaning/purpose; faith/belief; and the future. As a patient's condition deteriorated, the emphasis shifted from 'fighting' the illness to making the most of the time left. Spiritual concerns could have been addressed by: having someone to talk to; supporting carers; and staff showing sensitivity/taking care to foster hope. A spiritual support home visiting service would be valued. CONCLUSIONS: Our sample experienced significant spiritual needs and would have welcomed spiritual care within the palliative care package. IMPLICATIONS FOR NURSING MANAGEMENT: Nurse managers could play a key role in developing this service and in leading further research to evaluate the provision of such a service in terms of its value to patients and other benefits including improved quality of life, spiritual wellbeing, reduced loneliness/isolation and a possible reduction in hospital admissions.

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References

2009Research on Religion, Spirituality, and Mental Health: A Review 2012Handbook of religion and health 2007Religiousness and Spiritual Support Among Advanced Cancer Patients and Associations With End-of-Life Treatment Preferences and Quality of Life 2003Effect of spiritual well-being on end-of-life despair in terminally-ill cancer patients 2004Exploring the spiritual needs of people dying of lung cancer or heart failure: a prospective qualitative interview study of patients and their carers 2006Religious Coping is Associated with the Quality of Life of Patients with Advanced Cancer 2004Discussing Spirituality With Patients: A Rational and Ethical Approach 2006Spiritual care in nursing: an overview of the research to date

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2016Association between Spirituality and Adherence to Management in Outpatients with Heart Failure 2020Preparing undergraduate nurses and midwives for spiritual care: Some developments in European education over the last decade 2015Clinical Validation of the Nursing Diagnosis Spiritual Distress in Cancer Patients Undergoing Chemotherapy 2018Spirituality, Spiritual Well-Being, and Spiritual Coping in Advanced Heart Failure: Review of the Literature

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