Articlegold2010

Connecting stories

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Disability Rights and Representation Down syndrome and intellectual disability research Inclusion and Disability in Education and Sport

Abstract

Social inclusion is a leading goal of policy and practice in care and support for persons with intellectual disabilities. However, its conceptualization, moral presuppositions and effects are far from clear. In answering the call for reconceptualization, the author refers to cultural-historical, sociological and philosophical analyses on otherness and the other and on their integration in thought, in discourse and in society. An alternative view of inclusion is offered in which the attention is not directed at political, legal, or managerial measures, but at connecting people by opening a dialogue in which life stories are exchanged. In the second part of this contribution, some theoretical foundations of such a narrative approach of social inclusion are developed. Also, preconditions are explored for a space in which a dialogue of life stories may flourish. The role of persons with intellectual disabilities as actors in and authors of life stories is explained. It is concluded that all care paradigms, including the current citizenship paradigm, suffer from a hegemonic dichotomy that frustrates social inclusion. A paradigm of encounter is proposed to underpin policies and practices in which a central place is cleared for the taking care of and nourishing of beneficial connections between people and their life stories.

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References

1986Of Other Spaces 1988Narrative knowing and the human sciences 1986Time and narrative 1990Soi même comme un autre 1998Postmodernity and its discontents 1989Narrative Knowing and the Human Sciences 1986Facts and Values 2019A History of Disability

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2018Disability as deprivation of capabilities: Estimation using a large-scale survey in Morocco and Tunisia and an instrumental variable approach 2013Inclusion as heterotopia: Spaces of encounter between people with and without intellectual disability 2016Stigma of persons with disabilities in Afghanistan: Examining the pathways from stereotyping to mental distress 2019Researching media participation by listening to people with disability 2021Putting down verbal and cognitive weaponry: the need for ‘experimental-relational spaces of encounter’ between people with and without severe intellectual disabilities 2022Social inclusion revisited: sheltered living institutions for people with intellectual disabilities as communities of difference

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