“It's Really a Roller Coaster”: Experience of Parenting Children with Developmental Disabilities

Abstract

The aim of this research was to explore the experience of parenting a child diagnosed with a developmental disability. The in-depth interviews were semistructured and open-ended, covering topics such as positive and negative experiences and time demand in raising a child with a developmental disability, their effects on family relationship and on physical and mental health of the parents, and the strategies for managing the negative experiences. Overall, the participants indicated that parenting a child with a developmental disability is both challenging and rewarding, depending on the circumstances facing parents in a particular day. The findings are interpreted in five thematic structures: (1) negotiating joys and sorrows, (2) physical and mental exhaustion, (3) negotiating with family matters, (4) social stigma, and (5) hope in the midst of despair, each of which comprised several subthemes/categories. The discussion includes implications of the findings.

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