Parental Stress in Mothers of Boys with Duchenne Muscular Dystrophy

Nancy E. Nereo

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Family and Disability Support Research Muscle Physiology and Disorders Neurogenetic and Muscular Disorders Research

Abstract

OBJECTIVE: To examine parental stress in mothers of boys with Duchenne muscular dystrophy (DMD). METHOD: Stress and its predictors were examined in mothers of boys with DMD (n = 112). Comparisons were made with mothers of healthy children (n = 800), children with cerebral palsy (CP; n = 28), siblings of boys with DMD (n = 46), and longitudinally (n = 16). RESULTS: The presence of problem child behaviors consistently predicted maternal stress. Stress related to child behavior was higher in the DMD versus the normative group. No differences in stress were found in the DMD versus CP groups. Stress related to boys with DMD versus siblings was not significantly different. Over time, maternal stress related to child variables diminished. CONCLUSION: Stress in mothers of boys with DMD is elevated, possibly due to increased problem behaviors, particularly in social interactions, rather than due to the physical demands of the disease alone.

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References

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2007Stability and prediction of parenting stress 2008Being the lifeline: The parent experience of caring for a child with neuromuscular disease on home mechanical ventilation 2010The effect of caregiving on women in families with Duchenne/Becker muscular dystrophy 2007Family Function in Families of Children With Duchenne Muscular Dystrophy 2008

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