Article2013

Outcomes in young adulthood: are we achieving community participation and inclusion?

Kylie M. Gray · Andrea M. Piccinin · Caroline M. Keating · John R. Taffe · Trevor R. Parmenter · Scott Michael Hofer +2 more

60 citations0/0 files storedJournal of Intellectual Disability Research

No readable copy stored yet — this record is metadata only.

Disability Education and Employment Down syndrome and intellectual disability research Family and Disability Support Research

Abstract

BACKGROUND: Despite recognition of the importance of integrated community living and support, there is evidence that parents remain the primary caregivers of young adults with intellectual disability (ID). In addition, employment rates remain low in this population. This study aimed to investigate the changes in living arrangements and participation in daytime activities over time in a community population of young people with ID. METHOD: The sample consisted of 536 participants aged 4.0-18.9 years at Wave 1, followed up at Wave 5 when aged 20.5-37.6 years. Information was collected on their living arrangements and daytime activities at both time points, along with living skills and information on community social inclusion at Wave 5. For parents still caring for their adult child with ID, information was also collected on parental ratings of their own mental and physical health, and their satisfaction with the long-term care arrangements for their adult child. RESULTS: A significant proportion of young people were still living with their parents at Wave 5. A greater proportion of those with a severe-profound degree of ID were living in residential care. Parents caring for their adult child reported high levels of mental health problems and dissatisfaction with the long-term care arrangements for their child. A small proportion of young people were in paid employment, and the majority was engaged in structured activities provided for those with an ID. Over one-third of the sample participated in a structured daytime activity for 10 or fewer hours per week, and 7% were not engaged in any structured daytime activity. CONCLUSIONS: These results suggest that adequate provision of accommodation and employment services for young adults with an ID is lacking. In many cases the responsibility of care continues to reside with parents as their children transition from childhood to adulthood. Greater attention is needed to address these issues and facilitate social inclusion and integration for young people with ID.

Citations in this library

Stored only when both papers are in the corpus — 60 citations exist upstream.

References

2013Diagnostic and Statistical Manual of Mental Disorders 1988A user's guide to the General Health Questionnaire 2000Working with the Experts: Collaborative research with people with an intellectual disability 1999The impact of employment on the quality of life of people with an intellectual disability 2003Competitive Employment 2010Adaptive Behavior Among Adults With Intellectual Disabilities and Its Relationship to Community Independence

Cited by

2016Impact of the UN convention on the rights of persons with disabilities (UN-CRPD) on mental health care research - a systematic review 2019Voices of youths on engagement in community life: a theoretical framework of belonging 2015Urban encounters limited: The importance of built-in boundaries in contacts between people with intellectual or psychiatric disabilities and their neighbours 2017Scoping review of social participation of individuals with profound intellectual disability in adulthood: What can I do once I finish school?

Imported from OpenAlex (CC0) — nothing here is generated.