Effects on Resilience of Caregivers of Persons With Autism Spectrum Disorder

Abir K. Bekhet · Norah L. Johnson · Jaclene A. Zauszniewski

69 citations0/0 files storedJournal of the American Psychiatric Nurses Association

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Family and Disability Support Research Nursing care and research Resilience and Mental Health

Abstract

BACKGROUND: Approximately 2.8 million people in the United States are diagnosed with autism spectrum disorder (ASD). Family caregivers manage many aspects of their care, which is demanding, overwhelming, and can affect their mental health. OBJECTIVE: This study examined the effects of caregiver burden (risk factor) and positive cognitions (protective factors) on resourcefulness (resilience indicator) in 95 caregivers of persons with ASD. DESIGN: Descriptive, correlational, and cross-sectional. RESULTS: Positive cognitions explained 32% of the variance in resourcefulness, F(1, 93) = 44.49, p < .001, and as positive cognitions increased, caregivers' resourcefulness increased. A substantial drop in the beta weight of caregiver burden from B = -.36 to -.04 when positive cognitions was entered the equation suggested that positive cognitions mediated the effect of caregiver burden on resourcefulness. CONCLUSION: The results support resilience theory and suggest a need for developing interventions to strengthen positive thinking among caregivers of persons with ASD.

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2013Diagnostic and Statistical Manual of Mental Disorders 1992A power primer.2000Diagnostic and Statistical Manual of Mental Disorders.2000The Construct of Resilience: A Critical Evaluation and Guidelines for Future Work 2008Parenting Stress in Mothers and Fathers of Toddlers with Autism Spectrum Disorders: Associations with Child Characteristics 2005Systems Analysis of Stress and Positive Perceptions in Mothers and Fathers of Pre-School Children with Autism 2007Evidence of resilience in families of children with autism 2005Syndrome specificity and behavioural disorders in young adults with intellectual disability: cultural differences in family impact

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