Burden and Support Needs of Carers of Persons with Borderline Personality Disorder

Rachel C. Bailey · Brin F. S. Grenyer

115 citations0/0 files storedHarvard Review of Psychiatry

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Personality Disorders and Psychopathology Family and Disability Support Research Family Caregiving in Mental Illness

Abstract

BACKGROUND: A major feature of personality disorders is significant impairment in interpersonal functioning, which may create challenges in close relationships. This article aims to systematically review the experience of carers of persons with personality disorders. METHOD: The PRISMA systematic review method was followed, and empirical studies written in English, published between 1996 and 2011, and cited in major electronic databases were searched. Studies meeting the following selection criteria were included: (1) carers or families of persons with personality disorders; (2) intervention involving the carers or families; (3) burden or related construct used. Studies were required to meet either criteria 1 and 3 or criteria 2 and 3. Reference lists were scanned, and experts were consulted for further studies. RESULTS: Six studies met inclusion criteria, representing data on 465 carers. Five of the six studies focused on carers of persons with borderline personality disorder. The findings indicated that carers experience elevated objective and subjective burden, grief, impaired empowerment, and mental health problems, including depression and anxiety. Scores on objective and subjective burden were half a standard deviation above the mean compared to carers of inpatients with other serious mental illnesses. CONCLUSIONS: This study is the first to report data on a large, aggregated sample of carers of persons with personality disorders. Significant gaps in the literature remain, and it is recommended that future research focus on the burden and support needs of carers of persons across different personality disorders, that attention be paid to the gender balance of patients, and that data be reported in a way to allow meta-analysis.

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2013Diagnostic and Statistical Manual of Mental Disorders 1977The CES-D Scale 2009The PRISMA Statement for Reporting Systematic Reviews and Meta-Analyses of Studies That Evaluate Health Care Interventions: Explanation and Elaboration 2026Childhood and Society 1965Childhood and Society 2008Prevalence, Correlates, Disability, and Comorbidity of DSM-IV Borderline Personality Disorder 1989Childhood trauma in borderline personality disorder 2006Prevalence and correlates of personality disorder in Great Britain

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2022Structural stigma and its impact on healthcare for borderline personality disorder: a scoping review 2016Recovery from Borderline Personality Disorder: A Systematic Review of the Perspectives of Consumers, Clinicians, Family and Carers 2015Experiences of family carers of people diagnosed with borderline personality disorder

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