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Societal views on orphan drugs: cross sectional survey of Norwegians aged 40 to 67
8 references·7 citing·48 second hop
Societal views on orphan drugs: cross sectional survey of Norwegians aged 40 to 67 (2010)Societal views on orphan drugs: cross sec…Assessing the economic challenges posed by orphan drugs (2007)Assessing the economic challe…Orphan drugs and the NHS: should we value rarity? (2005)Orphan drugs and the NHS: sho…Drugs for exceptionally rare diseases: do they deserve special status for funding? (2005)Drugs for exceptionally rare …Cost-Effectiveness Analysis in a Setting of Budget Constraints — Is It Equitable? 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The need for alternative methods to evaluate medical interventions for ultra-rare disorders (2014)Incremental cost per quality-…Orphan Drugs for Rare Diseases (2012)Orphan Drugs for Rare DiseasesKey principles for the improved conduct of health technology assessments for resource allocation decisions (2008)The Oxford Handbook of Regulation (2010)Conjoint Analysis Applications in Health—a Checklist: A Report of the ISPOR Good Research Practices for Conjoint Analysis Task Force (2011)Foundations of Cost-Effectiveness Analysis for Health and Medical Practices (1977)Utility approach to measuring health-related quality of life (1987)Quality-adjusted Life Years, Utility Theory, and Healthy-years Equivalents (1989)Chapter 2 An overview of the normative economics of the health sector (2000)QALYs: Some Challenges (2009)Severity of illness and priority setting in healthcare: A review of the literature (2009)QALYfying the value of life. (1987)Explaining the Identifiable Victim Effect (1997)A rational framework for decision making by the National Institute For Clinical Excellence (NICE) (2002)Public healthcare resource allocation and the Rule of Rescue (2008)SOCIETAL VIEWS ON NICE, CANCER DRUGS FUND AND VALUE‐BASED PRICING CRITERIA FOR PRIORITISING MEDICINES: A CROSS‐SECTIONAL SURVEY OF 4118 ADULTS IN GREAT BRITAIN (2012)Multiple Criteria Decision Analysis (MCDA) for evaluating new medicines in Health Technology Assessment and beyond: The Advance Value Framework (2017)Judgment under Uncertainty: Heuristics and Biases (1974)Prospect Theory: An Analysis of Decision under Risk (1979)Perception of Risk (1987)Prospect theory: An analysis of decision under risk (1988)Toward a Theory of Situation Awareness in Dynamic Systems (1995)Framing Processes and Social Movements: An Overview and Assessment (2000)Setting Health Care Priorities in Oregon (1991)Intergenerational Equity: An Exploration of the ‘Fair Innings’ Argument (1997)QALY maximisation and people's preferences: a methodological review of the literature (2004)A journey of hope: lessons learned from studies on rare diseases and orphan drugs (2006)Ethical imperatives of timely access to orphan drugs: is possible to reconcile economic incentives and patients’ health needs? (2017)Challenges in Research and Health Technology Assessment of Rare Disease Technologies: Report of the ISPOR Rare Disease Special Interest Group (2018)Elimination by aspects: A theory of choice. (1972)Decision making: A psychological analysis of conflict, choice, and commitment (1978)Adding Asymmetrically Dominated Alternatives: Violations of Regularity and the Similarity Hypothesis (1982)Reason-based choice (1993)RETRACTED: Procrastination, Deadlines, and Performance: Self-Control by Precommitment (2002)Decision making and the avoidance of cognitive demand. (2010)Cost-Effectiveness Analysis and the Consistency of Decision Making (2001)Does NICE have a cost‐effectiveness threshold and what other factors influence its decisions? A binary choice analysis (2004)National Institute for Clinical Excellence and its value judgments (2004)Pricing and reimbursement of orphan drugs: the need for more transparency (2011)Paying for the Orphan Drug System: break or bend? Is it time for a new evaluation system for payers in Europe to take account of new rare disease treatments? (2012)Access to Orphan Drugs: A Comprehensive Review of Legislations, Regulations and Policies in 35 Countries (2015)Heuristics and biases in equity judgments: A utilitarian approach (1993)Cost Effectiveness in Low- and Middle-Income Countries (2009)Attributes and weights in health care priority setting: A systematic review of what counts and to what extent (2015)Characteristics of Clinical Trials to Support Approval of Orphan vs Nonorphan Drugs for Cancer (2011)Socio-economic burden of rare diseases: A systematic review of cost of illness evidence (2014)A BEHAVIORAL MODEL OF RATIONAL CHOICE (1955)Bias in judgment: Comparing individuals and groups. (1996)Social Choice Theory and Deliberative Democracy: A Reconciliation (2002)Social norms: A review (2016)
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References

  • 1981The Framing of Decisions and the Psychology of Choice17,834 cited
  • 1985The Framing of Decisions and the Psychology of Choice1,252 cited
  • 1992Choice under Conflict: The Dynamics of Deferred Decision1,013 cited
  • 2007Assessing the economic challenges posed by orphan drugs279 cited
  • 1995Maximizing health benefits vs egalitarianism: An Australian survey of health issues263 cited
  • 2005Orphan drugs and the NHS: should we value rarity?229 cited
  • 1996Cost-Effectiveness Analysis in a Setting of Budget Constraints — Is It Equitable?225 cited
  • 2005Drugs for exceptionally rare diseases: do they deserve special status for funding?220 cited

Cited by

  • 2014Orphan drugs policies: a suitable case for treatment84 cited
  • 2017HTA programme response to the challenges of dealing with orphan medicinal products: Process evaluation in selected European countries83 cited
  • 2020Establishing a reasonable price for an orphan drug78 cited
  • 2015Can the EVIDEM Framework Tackle Issues Raised by Evaluating Treatments for Rare Diseases: Analysis of Issues and Policies, and Context-Specific Adaptation77 cited
  • 2012Orphan Drugs for Rare Diseases74 cited
  • 2014Incremental cost per quality-adjusted life year gained? The need for alternative methods to evaluate medical interventions for ultra-rare disorders

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73 cited
  • 2016Systematic review on the evaluation criteria of orphan medicines in Central and Eastern European countries67 cited