This chapter is written in two sections, each with its own introduction and background. “The Road to Diagnosis” is not intended to be exhaustive. Discussion touches on the role of the psychologist and neuropsychologist in the NLD diagnostic process in light of considered views of experts offered in earlier chapters. The critical need to assess executive functions (EFs) as a core component of an NLD is raised as well as the need to include NLD in a formal classification system. Formal inclusion of NLD in an organized structure not only has potential to transform lives on an international scale, but it would acknowledge accumulated scientific research findings, and persistent advocacy of investigators. The “Post-School Life” section discusses realistic issues that may be experienced by those who live with, teach, care for, guide, and advocate for an individual with shunted hydrocephalus, spina bifida, and NLD. This section reports, as impartially as possible, some of the author's lived experience.
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