Article2002

Grandparent Support for Families of Children with Down's Syndrome

Richard Patrick Hastings · Nicole Delwiche

61 citations0/0 files storedJournal of Applied Research in Intellectual Disabilities

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Family and Disability Support Research Down syndrome and intellectual disability research Family Caregiving in Mental Illness

Abstract

Background Although grandparents are recognized as an important source of support for families of children with intellectual and other disabilities, there has been very little research in this area. The aim of the present paper is to present a brief overview of the literature, and to present data from a preliminary study of relationships between parental stress and grandparent support and conflict. Methods Sixty‐one parents of children with Down's syndrome (34 mothers and 27 fathers) completed questionnaires on grandparent support and conflict. Parents also completed the Friedrich Short Form of the Questionnaire on Resources and Stress (QRS) with scoring amended to include a depression sub‐scale. Results The main findings were: (1) grandparent support and conflict were associated with mothers' but not fathers' ratings of stress on the QRS, and (2) both grandparent support and conflict made independent contributions to the prediction of mothers' stress on at least one dimension of the QRS. Conclusions Practical implications of the results for interventions designed to encourage grandparent support for families are discussed. Issues for further research and methodological problems with the study are also identified.

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1983A short-form of the Questionnaire on Resources and Stress.1994Resources and Strategies: How Parents Cope with the Care of a Disabled Child 1999Mothers and Fathers of Children With Down Syndrome: Parental Stress and Involvement in Childcare 1991Factors Related to Stress and Satisfaction with Life in Families of Children with Down's Syndrome 1998Custodial Grandparenting and the Impact of Grandchildren with Problems on Role Satisfaction and Role Meaning 1999Grandmothers Providing Care for Grandchildren: Consequences of Various Levels of Caregiving 1980Parents' reactions after the birth of a developmentally disabled child.1999Custodial Grandparenting: Stresses, Coping Skills, and Relationships with Grandchildren

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2021Social support, resilience, and quality of life for families with children with intellectual disabilities

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