Value, vulnerability and voice: An integrative review on research assent

Abstract

Accessible summary Everyone can be part of research. Some may need extra time and attention to decide if they want to take part in a research study, also called assent. This paper gives ideas to support people with learning disabilities in making their own choices. Abstract Background Research assent is a term used with those deemed vulnerable, for whom modifications and additional considerations are required when requesting their voluntary agreement to participate in research. Methods The authors’ research experiences and inclusive research principles were integrated with a review of literature on research assent with individuals with significant learning disabilities. Findings Vulnerability can be reconceived through the value and voice of participation in research. We provide practical suggestions for those who oversee social science research, as well as offer guidance to researchers considering inclusive research but for whom practical considerations are required. Conclusion To enhance participant diversity and a generative contribution to knowledge, consideration about research assent is needed. The absence from research can perpetuate exclusion from society.

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