Good Spirit, Good Life: A Quality of Life Tool and Framework for Older Aboriginal Peoples

Kate Smith · Lianne Gilchrist · Kevin Taylor · Christine Clinch · Dina LoGiudice · Paula Edgill +4 more

67 citations0/0 files storedThe Gerontologist

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Indigenous Health, Education, and Rights Aging, Elder Care, and Social Issues Aging, Health, and Disability

Abstract

BACKGROUND AND OBJECTIVES: The lack of appropriate quality of life (QoL) measures is a major barrier to planning and delivering health and aged care services for older Indigenous peoples worldwide. QoL is dependent on cultural values and priorities may vary between age groups. This project aims to develop a QoL tool for older Aboriginal Australians. RESEARCH DESIGN AND METHODS: The study was completed with Aboriginal Australians aged over 45 years living in Perth and Melbourne, Australia. Participatory Action Research methods were applied with an Indigenous research paradigm. Semistructured interviews were undertaken to identify the factors important to having a good life. Factors were further explored in yarning groups with older Aboriginal peoples to develop the draft QoL tool questions. Face validity of the tool was completed in two regions. RESULTS: The participants preferred the term "a good life" to QoL. Having a good spirit is at the core of having a good life. The protective factors for a good life were family and friends, health, culture, Elder role, respect, Country, spirituality, services and supports, community, future plans, safety and security, and basic needs. DISCUSSION AND IMPLICATIONS: Twelve factors were identified and developed into key questions for the Good Spirit, Good Life tool. The draft tool will undergo quantitative validity testing, prior to embedding in service provision to inform care for older Aboriginal peoples. With local adaptation, the tool, accompanying framework, and participatory methods for development may have wider applicability to other Indigenous populations worldwide.

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References

1995The World Health Organization quality of life assessment (WHOQOL): Position paper from the World Health Organization 2010Yarning About Yarning as a Legitimate Method in Indigenous Research 2018Australian code for the responsible conduct of research 2014Aboriginal and Torres Strait Islander Social and Emotional Wellbeing 2019Aboriginal and Torres Strait Islander people's domains of wellbeing: A comprehensive literature review 2003The health of indigenous peoples 2011Indigenous Knowledge and Respectful Design: An Evidence-Based Approach 2021State of the World’s Indigenous Peoples

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2020Older Aboriginal Australians’ Health Concerns and Preferences for Healthy Ageing Programs 2021What Matters 2 Adults (WM2Adults): Understanding the Foundations of Aboriginal and Torres Strait Islander Wellbeing 2022Validation of the Good Spirit, Good Life quality‐of‐life tool for older Aboriginal Australians 2022Understanding the Impact and Tackling the Burden of Osteoarthritis for Aboriginal and Torres Strait Islander People 2024Development of the What Matters 2 Adults (WM2A) wellbeing measure for Aboriginal and Torres Strait Islander adults

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