Article2020

Hearing and Heeding the Voices of those With Advanced Illnesses

Katherine M. Piderman · Carmen Radecki Breitkopf · Sarah M. Jenkins · Cory J. Ingram · Terin T. Sytsma · Maria I. Lapid +4 more

21 citations0/0 files storedJournal of Palliative Care

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Religion, Spirituality, and Psychology Palliative Care and End-of-Life Issues Palliative and Oncologic Care

Abstract

OBJECTIVES: To describe the feasibility of a chaplain-led spiritually focused life review interview and the development of a spiritual legacy document (SLD) for patients with advanced diseases and to describe changes in spiritual well-being (SWB), spiritual coping strategies (SC), and quality of life (QOL) after receiving the SLD. PATIENTS AND METHODS: In all, 130 patients and support person (SP) pairs were recruited from July 2012 to January 2019. Following enrollment, demographic information was gathered and baseline questionnaires were administered. Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being Scale (FACIT-Sp-12) and a linear analog scale assessment (LASA) measured SWB. LASAs also measured QOL and emotional well-being (EWB). Positive Religious Coping Scale (RCOPE) measured SC. After completion of baseline forms, participants were interviewed (individually) by a chaplain. Interviews were digitally recorded, transcribed, and verified. Transcripts were edited and participants were given the opportunity to make adaptations. The participant-approved draft was then developed into a professionally printed SLD. Follow-up questionnaires were administered to assess change. RESULTS: = .007). Effect sizes were approximately 0.25. Considering any improvement, 61.0% improved their positive RCOPE score, 46.6% improved EWB, and 39.7% improved SWB. No significant changes were found on the FACIT-Sp-12. No significant changes were found for SPs. CONCLUSION: The results suggest that the primary participants who completed the study benefited by significantly increasing their QOL, SWB, EWB, and SC.

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References

1998Patterns of Positive and Negative Religious Coping with Major Life Stressors 2000The many methods of religious coping: Development and initial validation of the RCOPE 2002Measuring spiritual well-being in people with cancer: The functional assessment of chronic illness therapy—spiritual well-being scale (FACIT-Sp)2009Improving the Quality of Spiritual Care as a Dimension of Palliative Care: The Report of the Consensus Conference 2008Spiritually integrated psychotherapy: understanding and addressing the sacred 2002A Biopsychosocial-Spiritual Model for the Care of Patients at the End of Life 1999The Psychology of Religion and Spirituality? Yes and No 1987Vital Involvement in Old Age

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