A Journey of Doing Research “In a Good Way”: Partnership, Ceremony, and Reflections Contributing to the Care and Wellbeing of Indigenous Women Living with HIV in Canada

Doris Peltier · Carrie Martin · Renée Masching · Mike Standup · Claudette Cardinal · Valerie Nicholson +14 more

16 citations0/0 files storedInternational Indigenous Policy Journal

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Indigenous Health, Education, and Rights Indigenous Cultures and History Qualitative Research Methods and Ethics

Abstract

The relationship between the First Peoples of Canada and researchers is changing as processes of self-determination and reconciliation are increasingly implemented. We used storytelling and ceremony to describe a historic event, the Indigenous Women’s Data Transfer Ceremony, where quantitative data of 318 Indigenous women living with HIV were transferred to Indigenous academic and community leaders. Relationship building, working together with a common vision, the Ceremony, and the subsequent activities were summarized as a journey of two boats. The Truth and Reconciliation Commission of Canada's Calls to Action and Indigenous ethical principles were central to the process. The article ends with team members’ reflections and the importance of shifting power to Indigenous Peoples in regard to data collection, their stories, and the resulting policies.

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20248 Decolonizing Methodologies: Research and Indigenous Peoples 2008Research Is Ceremony: Indigenous Research Methods 2009Indigenous Methodologies: Characteristics, Conversations, and Contexts 2013Decolonizing Methodologies: Research and Indigenous Peoples 1996Report of the Royal Commission on Aboriginal Peoples 2006RESEARCH AS RESISTANCE: Critical, Indigenous, and Anti-Oppressive Approaches 2014Indigenous statistics: a quantitative research methodology 2008Enacting Research Ethics in Partnerships with Indigenous Communities in Canada: “Do it in a Good Way”

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