The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period

Gemma Rogers · Gisela Perez‐Olivas · Biza Stenfert Kroese · Varsha Patel · Glynis H. Murphy · John Rose +5 more

74 citations0/0 files storedJournal of Applied Research in Intellectual Disabilities

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Family and Disability Support Research COVID-19 and Mental Health Down syndrome and intellectual disability research

Abstract

BACKGROUND: Recent COVID-19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers. AIM: The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period. METHODS: Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis. RESULTS: Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future. CONCLUSIONS: All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well-being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.

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2020The psychological impact of quarantine and how to reduce it: rapid review of the evidence 2020Challenges and burden of the Coronavirus 2019 (COVID-19) pandemic for child and adolescent mental health: a narrative review to highlight clinical and research needs in the acute phase and the long return to normality 2020Mental health in the COVID-19 pandemic 2006Is verbatim transcription of interview data always necessary?2020How is COVID-19 Affecting the Mental Health of Children with Special Educational Needs and Disabilities and Their Families?2020Psychosocial and Behavioral Impact of COVID-19 in Autism Spectrum Disorder: An Online Parent Survey 2002Parental stress and behaviour problems of children with developmental disability 2003“What do you mean ‘what's wrong with her?’”: stigma and the lives of families of children with disabilities

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