Disparities Made Invisible: Gaps in COVID-19 Data for American Indian and Alaska Native Populations

Alexandra Skinner · Julia Raifman · Elizabeth K Ferrara · Will Raderman · Talía M. Quandelacy

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Indigenous Health, Education, and Rights COVID-19 epidemiological studies Indigenous Health and Education

Abstract

Introduction: Complete COVID-19 data for American Indian/Alaska Native (AI/AN) populations are critical to equitable pandemic response. Methods: We used the COVID-19 U.S. State Policy database to document gaps in COVID-19 data reporting for AI/AN people. Results: Sixty-four percent of states do not report AI/AN data for at least one COVID-19 health metric: cases, hospitalizations, deaths, or vaccinations. Discussion: The lack of AI/AN-specific data masks the disproportionate burden of COVID-19 and presents challenges to COVID-19 prevention, policy implementation, and health equity. Conclusions: Public-facing data disaggregated by race may facilitate rapid response COVID-19 research and policymaking to support AI/AN communities.

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References

2021Indigenous data sovereignty and COVID-19 data issues for American Indian and Alaska Native Tribes and populations 2021Identifying Disparities in Health Outcomes and Mortality for American Indian and Alaska Native Populations Using Tribally Disaggregated Vital Statistics and Health Survey Data

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2025A systematic review of responsible stewardship of research and health data from Indigenous communities

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