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Valuing the “Burden” and Impact of Rare Diseases: A Scoping Review
13 references·0 citing·46 second hop
Valuing the “Burden” and Impact of Rare Diseases: A Scoping Review (2022)Valuing the “Burden” and Impact of Rare D…Health-Related Quality of Life in Patients With Different Diseases Measured With the EQ-5D-5L: A Systematic Review (2021)Health-Related Quality of Lif…Affective and anxiety disorders in patients with different rare chronic diseases: a systematic review and meta-analysis (2021)Affective and anxiety disorde…Depression and anxiety in patients with different rare chronic diseases: A cross-sectional study (2019)Depression and anxiety in pat…Health related quality of life aspects not captured by EQ-5D-5L: Results from an international survey of patients (2018)Health related quality of lif…How Can Pricing and Reimbursement Policies Improve Affordable Access to Medicines? Lessons Learned from European Countries (2017)How Can Pricing and Reimburse…Social/economic costs and health-related quality of life in patients with juvenile idiopathic arthritis in Europe (2016)Social/economic costs and hea…Social/economic costs and health-related quality of life in patients with epidermolysis bullosa in Europe (2016)Social/economic costs and hea…Social/economic costs and health-related quality of life in patients with Duchenne muscular dystrophy in Europe (2016)Social/economic costs and hea…Socio-economic burden of rare diseases: A systematic review of cost of illness evidence (2014)Socio-economic burden of rare…Cost-of-illness studies: concepts, scopes, and methods (2014)Cost-of-illness studies: conc…Health-related quality of life and supportive care in patients with rare long-term neurological conditions (2012)Health-related quality of lif…Health outcomes in economic evaluation: the QALY and utilities (2010)Health outcomes in economic e…Social economic costs and health‐related quality of life in patients with degenerative cerebellar ataxia in Spain (2007)Social economic costs and hea…Cost-Effectiveness in Health and Medicine (1996)EuroQol: the current state of play (1996)Modeling Valuations for EuroQol Health States (1997)EQ-5D for the Assessment of Health-Related Quality of Life and Resource Allocation in Children: A Systematic Methodological Review (2011)The impact of acquired brain damage in terms of epidemiology, economics and loss in quality of life (2011)Social and economic costs and health-related quality of life in stroke survivors in the Canary Islands, Spain (2012)Investment in Human Capital and Personal Income Distribution (1958)Economic Costs of Diabetes in the U.S. in 2002 (2003)Economic and Humanistic Burden of Osteoarthritis: A Systematic Review of Large Sample Studies (2016)The cost of mental disorders: a systematic review (2020)The economic burden of stroke: a systematic review of cost of illness studies (2021)Cost-of-Illness Methodology: A Guide to Current Practices and Procedures (1982)Cost-effectiveness analysis. 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References

  • 2010Health outcomes in economic evaluation: the QALY and utilities1,122 cited
  • 2014Cost-of-illness studies: concepts, scopes, and methods798 cited
  • 2014Socio-economic burden of rare diseases: A systematic review of cost of illness evidence307 cited
  • 2021Health-Related Quality of Life in Patients With Different Diseases Measured With the EQ-5D-5L: A Systematic Review213 cited
  • 2017How Can Pricing and Reimbursement Policies Improve Affordable Access to Medicines? Lessons Learned from European Countries203 cited
  • 2019Depression and anxiety in patients with different rare chronic diseases: A cross-sectional study111 cited
  • 2016Social/economic costs and health-related quality of life in patients with epidermolysis bullosa in Europe104 cited
  • 2007Social economic costs and health‐related quality of life in patients with degenerative cerebellar ataxia in Spain100 cited
  • 2018Health related quality of life aspects not captured by EQ-5D-5L: Results from an international survey of patients90 cited
  • 2016Social/economic costs and health-related quality of life in patients with Duchenne muscular dystrophy in Europe85 cited
  • 2016Social/economic costs and health-related quality of life in patients with juvenile idiopathic arthritis in Europe64 cited
  • 2012Health-related quality of life and supportive care in patients with rare long-term neurological conditions63 cited
  • 2021Affective and anxiety disorders in patients with different rare chronic diseases: a systematic review and meta-analysis

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