Exploring the views and the use of information and communication technologies to access post-diagnostic support by people living with dementia and unpaid carers: a systematic review

Thaïs Caprioli · Stephen R Mason · Hilary Tetlow · Siobhán Reilly · Clarissa Marie Giebel

22 citations0/0 files storedAging & Mental Health

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Technology Use by Older Adults Dementia and Cognitive Impairment Research Telemedicine and Telehealth Implementation

Abstract

OBJECTIVES: This systematic review examined how information communication technologies (ICT) has been used to access remote post-diagnostic support that address the needs people with dementia, or those of dyad, and explored care recipients' views on accessing support remotely. METHOD: Concepts relating to dementia and ICT were searched across six databases (PsychInfo, PubMed, Cochrane Library, CINAHL, Social Care Online, and Web of Science) in March 2021 and updated in March 2022. Studies published from 1990 and written in English, German or French were considered for inclusion. Methodological quality was appraised using the Hawker quality assessment tool and reporting structured according to PRISMA guidelines. RESULTS: The search yielded 8,485 citations. Following the removal of duplicates and screening processes, 18 papers reporting on 17 studies were included. Studies described a range of post-diagnostic support, including medical follow-ups and therapeutic sessions, and were often delivered on a one-to-one basis via videoconferencing software. Whilst often relying on assistance from unpaid carers, people with dementia directly engaged with ICT to access post-diagnostic support in 13 studies. Accessing post-diagnostic support remotely appears feasible, nevertheless, care recipients' views were mixed. Access was frequently facilitated by supplying devices and providing ongoing technological support. CONCLUSIONS: Accessing post-diagnostic support remotely is likely to benefit some care recipients, however, to prevent widening inequalities in access, services within the current hybrid landscape need to accommodate to people who are digitally excluded. Future research should capture the support provided by unpaid carers to facilitate the engagement of people with dementia to remote post-diagnostic support.

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2009The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate health care interventions: explanation and elaboration 2002Appraising the Evidence: Reviewing Disparate Data Systematically 2018From internet access to internet skills: digital inequality among older adults 2006Clear and present questions: formulating questions for evidence based practice 2020A UK survey of COVID‐19 related social support closures and their effects on older people, people with dementia, and carers 2021Assistive Technologies in Dementia Care: An Updated Analysis of the Literature 2022The use of digital technologies by people with mild-to-moderate dementia during the COVID-19 pandemic: A positive technology perspective 2016Evaluation of the Digital Alzheimer Center: Testing Usability and Usefulness of an Online Portal for Patients with Dementia and Their Carers

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