Use of Social Media in Stroke: A Systematic Review

Divyani Garg · Ayush Agarwal · MV Padma Srivastava · Venugopalan Y. Vishnu

10 citations0/0 files storedAnnals of Indian Academy of Neurology

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Social Media in Health Education Health Literacy and Information Accessibility Mobile Health and mHealth Applications

Abstract

Background: Stroke is a leading cause of death and disability globally. Over the last decade, digital health and related technology has emerged as a useful adjunct in the management of persons with stroke, particularly with the development of a large number of mobile phone applications dedicated to various aspects of stroke. However, whether social media can provide similar key support in stroke is an intriguing question. In this systematic review, we aimed to the scope and limits of social media platforms in care and research pertinent to persons with stroke. Methods: PubMed database was searched using Medical Subject Headings terms and exploded keywords. The search retrieved 556 abstracts, which were screened by two reviewers. Of these, 14 studies met the review inclusion criteria. Given the small number of studies and heterogeneity of outcomes, quantitative analysis was not possible. The review was registered on PROSPERO (CRD42022324384). Results: The social media platforms employed by the included studies comprised YouTube (n = 5), Twitter (n = 5), Facebook (n = 2), both Twitter and Facebook (n = 1), and WhatsApp (n = 1). Four assessed quality and accuracy of videos on YouTube available for stoke patients and caregivers. Three used social media to research link between role of gender and stroke descriptors on social media platforms, and one studied Twitter-derived racial/ethnic perceptual construction on the occurrence of cardiovascular disease. Three studies described use of social media by stroke survivors, in post-stroke care and engagement. 11 studies were assessed to be of "fair" quality and three were assessed to be of "poor" quality. Conclusions: Limited preliminary data of low quality indicates that social media is used by persons with stroke and their caregivers, and may be harnessed as a tool of education and research. Future studies must address the current lack of high-quality evidence for the use of social media in stroke care.

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2014Social Media: A Review and Tutorial of Applications in Medicine and Health Care 2015Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey 2020YouTube as a source of patient information for stroke: A content-quality and an audience engagement analysis 2021Use of Social Media in Health Care—Opportunities, Challenges, and Ethical Considerations 2020YouTube as a Source of Information for Transcranial Magnetic Stimulation in Stroke: A Quality, Reliability and Accuracy Analysis 2018New Horizons for Stroke Medicine: Understanding the Value of Social Media 2018#Stroke 2022The Twitter factor: How does Twitter impact #Stroke journals and citation rates?

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