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Recommendations to address respondent burden associated with patient-reported outcome assessment
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Recommendations to address respondent burden associated with patient-reported outcome assessment (2024)Recommendations to address respondent bur…Patient reported outcome assessment must be inclusive and equitable (2022)Patient reported outcome asse…Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection (2022)Key considerations to reduce …SPIRIT-PRO Extension explanation and elaboration: guidelines for inclusion of patient-reported outcomes in protocols of clinical trials (2021)SPIRIT-PRO Extension explanat…The impact of patient-reported outcome (PRO) data from clinical trials: a systematic review and critical analysis (2019)The impact of patient-reporte…Maximising the impact of patient reported outcome assessment for patients and society (2019)Maximising the impact of pati…Harnessing the patient voice in real-world evidence: the essential role of patient-reported outcomes (2019)Harnessing the patient voice …Guidelines for Inclusion of Patient-Reported Outcomes in Clinical Trial Protocols (2018)Guidelines for Inclusion of P…The COMET Handbook: version 1.0 (2017)The COMET Handbook: version 1…Using the framework method for the analysis of qualitative data in multi-disciplinary health research (2013)Using the framework method fo…ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research (2013)ISOQOL recommends minimum sta…Response Burden and Questionnaire Length: Is Shorter Better? A Review and Meta-analysis (2011)Response Burden and Questionn…Expecting a good quality of life in health: assessing people with diverse diseases and conditions using the WHOQOL‐BREF (2011)Expecting a good quality of l…Choice of recall period for patient-reported outcome (PRO) measures: criteria for consideration (2011)Choice of recall period for p…Encyclopedia of Survey Research Methods (2008)Encyclopedia of Survey Resear…Patient-Reported Outcomes: Instrument Development and Selection Issues (2007)Patient-Reported Outcomes: In…Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO) Measures: Report of the ISPOR Task Force for Translation and Cultural Adaptation (2005)Principles of Good Practice f…Three Approaches to Qualitative Content Analysis (2005)Member Checking (2016)The Discovery of Grounded Theory (2017)One size fits all? What counts as quality practice in (reflexive) thematic analysis? (2020)Toward good practice in thematic analysis: Avoiding common problems and be(com)ing a knowing researcher (2022)The Coding Manual for Qualitative Researchers (2025)Quality criteria were proposed for measurement properties of health status questionnaires (2006)The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes (2010)Core Outcome Measures in Effectiveness Trials (COMET) initiative: protocol for an international Delphi study to achieve consensus on how to select outcome measurement instruments for outcomes included in a ‘core outcome set’ (2014)A Standard Set of Value-Based Patient-Centered Outcomes for Breast Cancer (2016)COSMIN reporting guideline for studies on measurement properties of patient-reported outcome measures (2021)A 12-Item Short-Form Health Survey (1996)Increasing response rates to postal questionnaires: systematic review (2002)Development of the Japanese version of the three-item loneliness scale (2019)Missing data in surveys: Key concepts, approaches, and applications (2021)Guidelines for the Process of Cross-Cultural Adaptation of Self-Report Measures (2000)Translation, adaptation and validation of instruments or scales for use in cross‐cultural health care research: a clear and user‐friendly guideline (2010)Conjoint Analysis Applications in Health—a Checklist: A Report of the ISPOR Good Research Practices for Conjoint Analysis Task Force (2011)Content Validity—Establishing and Reporting the Evidence in Newly Developed Patient-Reported Outcomes (PRO) Instruments for Medical Product Evaluation: ISPOR PRO Good Research Practices Task Force Report: Part 2—Assessing Respondent Understanding (2011)Health Measurement Scales: A Practical Guide to Their Development and Use (1989)EuroQol - a new facility for the measurement of health-related quality of life (1990)Development of the World Health Organization WHOQOL-BREF Quality of Life Assessment (1998)Quality of Life and Social Isolation Among Caregivers of Adults with Schizophrenia: Policy and Outcomes (2015)How will the sustainable development goals deliver changes in well-being? A systematic review and meta-analysis to investigate whether WHOQOL-BREF scores respond to change (2018)CONSORT 2010 Explanation and Elaboration: updated guidelines for reporting parallel group randomised trials (2010)CONSORT 2010 Statement: updated guidelines for reporting parallel group randomised trials (2010)Standards for Reporting Qualitative Research (2014)A taxonomy has been developed for outcomes in medical research to help improve knowledge discovery (2017)Core Outcome Set-STAndards for Development: The COS-STAD recommendations (2017)COSMIN guideline for systematic reviews of patient-reported outcome measures version 2.0 (2024)SPIRIT 2013 explanation and elaboration: guidance for protocols of clinical trials (2013)SPIRIT 2013 Statement: Defining Standard Protocol Items for Clinical Trials (2013)Incorporating the patient experience into regulatory decision making in the USA, Europe, and Canada (2018)Great Expectations: recommendations for improving the methodological rigor of psychedelic clinical trials (2022)How to select outcome measurement instruments for outcomes included in a “Core Outcome Set” – a practical guideline (2016)Clinimetric Criteria for Patient-Reported Outcome Measures (2021)Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement (2009)Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement (2009)Preferred reporting items for systematic reviews and meta-analyses: the PRISMA Statement. (2009)Assessing the collection and reporting of patient-reported outcome data in interventional cancer trials: a single institution, retrospective systematic evaluation (2022)Effectiveness and cost-effectiveness of a web-based routine assessment with integrated recommendations for action for depression and anxiety (RehaCAT+): protocol for a cluster randomised controlled trial for patients with elevated depressive symptoms in rehabilitation facilities (2022)Social media and citizen engagement: A meta-analytic review (2015)A Large‐Scale Survey on Trauma, Burnout, and Posttraumatic Growth among Nurses during the COVID‐19 Pandemic (2020)Social Media, Web, and Panel Surveys: Using Non‐Probability Samples in Social and Policy Research (2020)
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References

  • 2013Using the framework method for the analysis of qualitative data in multi-disciplinary health research10,836 cited
  • 2005Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO) Measures: Report of the ISPOR Task Force for Translation and Cultural Adaptation5,518 cited
  • 2008Encyclopedia of Survey Research Methods2,688 cited
  • 2017The COMET Handbook: version 1.02,006 cited
  • 2011Response Burden and Questionnaire Length: Is Shorter Better? A Review and Meta-analysis950 cited
  • 2013ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research847 cited
  • 2018Guidelines for Inclusion of Patient-Reported Outcomes in Clinical Trial Protocols813 cited
  • 2019Maximising the impact of patient reported outcome assessment for patients and society329 cited
  • 2011Expecting a good quality of life in health: assessing people with diverse diseases and conditions using the WHOQOL‐BREF203 cited
  • 2019The impact of patient-reported outcome (PRO) data from clinical trials: a systematic review and critical analysis194 cited
  • 2022Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection191 cited
  • 2007Patient-Reported Outcomes: Instrument Development and Selection Issues165 cited
  • 2019Harnessing the patient voice in real-world evidence: the essential role of patient-reported outcomes

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157 cited
  • 2022Patient reported outcome assessment must be inclusive and equitable153 cited
  • 2021SPIRIT-PRO Extension explanation and elaboration: guidelines for inclusion of patient-reported outcomes in protocols of clinical trials135 cited
  • 2011Choice of recall period for patient-reported outcome (PRO) measures: criteria for consideration128 cited
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