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Indigenous data governance approaches applied in research using routinely collected health data: a scoping review
15 references·1 citing·41 second hop
Indigenous data governance approaches applied in research using routinely collected health data: a scoping review (2024)Indigenous data governance approaches app…The CARE Principles for Indigenous Data Governance (2020)The CARE Principles for Indig…Indigenous Data Sovereignty in the Era of Big Data and Open Data (2020)Indigenous Data Sovereignty i…Trends in mental health related contacts among mothers of Aboriginal children in Western Australia (1990–2013): a linked data population-based cohort study of over 40 000 children (2019)Trends in mental health relat…The health needs of Aboriginal and Torres Strait Islander children in out‐of‐home care (2019)The health needs of Aborigina…Good data practices for indigenous data sovereignty and governance (2019)Good data practices for indig…Big data in healthcare: management, analysis and future prospects (2019)Big data in healthcare: manag…PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation (2018)PRISMA Extension for Scoping …Our health counts: population-based measures of urban Inuit health determinants, health status, and health care access (2018)Our health counts: population…The REporting of Studies Conducted Using Observational Routinely-Collected Health Data (RECORD) Statement: Methods for Arriving at Consensus and Developing Reporting Guidelines (2015)The REporting of Studies Cond…Picture of the health status of Aboriginal children living in an urban setting of Sydney (2015)Picture of the health status …Implementing a working together model for Aboriginal patients with acute coronary syndrome: an Aboriginal Hospital Liaison Officer and a specialist cardiac nurse working together to improve hospital care (2014)Implementing a working togeth…A scoping review of scoping reviews: advancing the approach and enhancing the consistency (2014)A scoping review of scoping r…Clinic Attendances during the First 12 Months of Life for Aboriginal Children in Five Remote Communities of Northern Australia (2013)Clinic Attendances during the…Using thematic analysis in psychology (2006)Using thematic analysis in ps…Scoping studies: towards a methodological framework (2005)Scoping studies: towards a me…Data science without borders: bridging the divide in data science capacity across African health institutions (2025)Data science without borders:…Improving the quality of reports of meta-analyses of randomised controlled trials: the QUOROM statement (1999)The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) Statement: Guidelines for reporting observational studies (2007)The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) Statement: Guidelines for Reporting Observational Studies (2007)Probabilistic record linkage (2015)Child maltreatment and mental health problems in adulthood: birth cohort study (2018)Long-term Cognitive, Psychological, and Health Outcomes Associated With Child Abuse and Neglect (2020)Qualitative evaluation and research methods (1990)Qualitative Data Analysis: An Expanded Sourcebook (1994)Basics of qualitative research : techniques and procedures for developing grounded theory (1998)Older Adults' Reasons for Using Technology while Aging in Place (2015)Thematic Analysis (2017)Reflecting on reflexive thematic analysis (2019)Assessing the quality of reports of randomized clinical trials: Is blinding necessary? (1996)Scoping studies: advancing the methodology (2010)A scoping review on the conduct and reporting of scoping reviews (2016)The global landscape of AI ethics guidelines (2019)Updated methodological guidance for the conduct of scoping reviews (2021)Infection Is the Major Component of the Disease Burden in Aboriginal and Non-Aboriginal Australian Children (2007)Disease burden and health-care climic attendances for young children in remote Aboriginal communities of northern Australia (2008)Indigenous health part 1: determinants and disease patterns (2009)A systematic review of the evidence that swimming pools improve health and wellbeing in remote Aboriginal communities in Australia (2015)Inequalities in pediatric avoidable hospitalizations between Aboriginal and non-Aboriginal children in Australia: a population data linkage study (2016)Housing conditions and health in Indigenous Australian communities: current status and recent trends (2019)Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement (2009)The PRISMA 2020 statement: an updated guideline for reporting systematic reviews (2021)The PRISMA 2020 statement: an updated guideline for reporting systematic reviews (2021)The PRISMA 2020 statement: An updated guideline for reporting systematic reviews (2021)Seeing like a State: How Certain Schemes to Improve the Human Condition Have Failed (1998)Decolonising Methodologies Research and Indigenous Peoples (2000)Decolonizing geoscience requires more than equity and inclusion (2021)Social equity in the data era: A systematic literature review of data‐driven public service research (2022)Indigenous Peoples: Traditional knowledges, climate change, and health (2023)Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach (2018)National strategic artificial intelligence plans: A multi-dimensional analysis (2020)Representation Bias in Data: A Survey on Identification and Resolution Techniques (2023)AI-Powered Innovation in Digital Transformation: Key Pillars and Industry Impact (2024)AI for Everyone? Critical Perspectives (2021)What are the best practices for psychotherapy with indigenous peoples in the United States and Canada? A thorny question. (2022)Reframing data ethics in research methods education: a pathway to critical data literacy (2023)Indigenous Data Sovereignty and Policy (2020)Tackling algorithmic bias and promoting transparency in health datasets: the STANDING Together consensus recommendations (2024)
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References

  • 2006Using thematic analysis in psychology193,725 cited
  • 2018PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation43,318 cited
  • 2005Scoping studies: towards a methodological framework36,603 cited
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  • 2019Big data in healthcare: management, analysis and future prospects1,747 cited
  • 2020The CARE Principles for Indigenous Data Governance1,399 cited
  • 2015The REporting of Studies Conducted Using Observational Routinely-Collected Health Data (RECORD) Statement: Methods for Arriving at Consensus and Developing Reporting Guidelines217 cited
  • 2020Indigenous Data Sovereignty in the Era of Big Data and Open Data206 cited
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  • 2013Clinic Attendances during the First 12 Months of Life for Aboriginal Children in Five Remote Communities of Northern Australia70 cited
  • 2019The health needs of Aboriginal and Torres Strait Islander children in out‐of‐home care44 cited
  • 2015Picture of the health status of Aboriginal children living in an urban setting of Sydney37 cited
  • 2018Our health counts: population-based measures of urban Inuit health determinants, health status, and health care access32 cited
  • 2014Implementing a working together model for Aboriginal patients with acute coronary syndrome: an Aboriginal Hospital Liaison Officer and a specialist cardiac nurse working together to improve hospital care

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26 cited
  • 2019Trends in mental health related contacts among mothers of Aboriginal children in Western Australia (1990–2013): a linked data population-based cohort study of over 40 000 children22 cited
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    • 2025Data science without borders: bridging the divide in data science capacity across African health institutions7 cited