Article2015

Facilitating employment opportunities for adults with intellectual and developmental disability through parents and social networks

Jami Petner‐Arrey · Angela Howell‐Moneta · Rosemary M. Lysaght

64 citations0/0 files storedDisability and Rehabilitation

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Disability Education and Employment Down syndrome and intellectual disability research Family and Disability Support Research

Abstract

PURPOSE: People with intellectual and developmental disability (IDD) have historically had high unemployment and underemployment rates and continue to face significant barriers to attaining and sustaining employment. The purpose of this research, conducted in Ontario, Canada was to better understand the experiences of people with IDD gaining and keeping productivity roles. METHOD: We used qualitative semi-structured interviews with 74 participants with IDD and their families or caregivers as proxies regarding the employment of a person with IDD. We selected a sample of persons from three different geographic regions in Ontario, Canada, and analyzed data through coding methods consistent with a grounded theory approach. RESULTS: Our results demonstrate the importance of parents and other members of social and family networks relative to connecting with work options and sustaining work over time, especially through continued advocacy and investment. Parents helped individuals with IDD negotiate the right job fit, though they often encountered challenges as a result of their efforts. CONCLUSION: Practitioners must understand how to support parents to be effective advocates for their adult children with IDD, assist them to develop and maintain their social networks and help them to avoid caregiver burnout. Implications for Rehabilitation People with intellectual and developmental disability (IDD) face numerous challenges in indentifying work options and overcoming barriers to employment. Parents and other non-paid support members of social networks can be instrumental in ensuring that persons with IDD not only secure initial job placements, but also sustain employment and employment alternatives. Professionals that support persons with IDD can direct their efforts to helping persons with IDD develop strong social connections, as well as helping parents to prevent burnout.

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References

2011Predictors of Postschool Employment Outcomes for Young Adults With Severe Disabilities 2012The Relationship between Parent Expectations and Postschool Outcomes of Adolescents with Disabilities 2005The effect of different types of employment on quality of life 2009Transitions from school for young adults with intellectual disability: Parental perspectives on “life as an adjustment”2007Public views on employment of people with intellectual disabilities 2008Why do adults with intellectual disabilities work in sheltered workshops?2005Factors affecting the likelihood that people with intellectual disabilities will gain employment 2008Stuck in transition? Exploring the spaces of employment training for youth with intellectual disability

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2017Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial 2020Environmental Factors that Impact the Workplace Participation of Transition-Aged Young Adults with Brain-Based Disabilities: A Scoping Review 2021Employment Sustainability for People with Intellectual Disability: A Systematic Review 2022Barriers to employment for people with intellectual disabilities in low‐ and middle‐income countries: Self‐advocate and family perspectives

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