Y ou T ube as a source of information on dialysis: A content analysis

Neetika Garg · Anand Venkatraman · Ambarish Pandey · Nilay Kumar

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Social Media in Health Education Misinformation and Its Impacts Health Literacy and Information Accessibility

Abstract

AIM: End-stage renal disease is a prevalent and growing health problem worldwide. With increasing Internet use, video-sharing websites could potentially serve as a powerful platform for dissemination of information on dialysis. We conducted a cross-sectional study to assess the accuracy, content and viewership of YouTube videos on dialysis. METHODS: YouTube videos identified using the search term 'dialysis' were classified independently by two physicians as 'useful,' 'misleading' and 'patient's personal experiences'. Five-point ordinal scales were used to grade reliability and quality. Information regarding source of upload, content in seven pre-defined domains and various viewer interaction metrics was collected. RESULTS: Of the 115 videos with cumulative duration of 16.2 h and viewership of approximately 2.7 million, 67 (58.3%) were useful, 19 (16.5%) were misleading and 29 (25.2%) represented patient's personal experiences; kappa statistic for inter-observer agreement was 0.985. Useful videos were the most comprehensive and had the highest reliability and quality scores. However, viewership per day was the lowest for useful videos at a median of 3 (interquartile range (IQR) 1-17), as compared with 11 (IQR 4-43) for misleading videos and 14 (IQR 5-30) for patient experiences (P = 0.013). All misleading videos were uploaded by individual users with unknown credentials. Of these, 68.4% promoted alternative therapies such as herbs and osmotherapy; 47.4% included advertisements for related services. CONCLUSIONS: Viewers favoured misleading videos and patient narratives over scientifically accurate information. Authoritative sources should use popular social media websites to provide relevant and easy-to-understand information on dialysis; including patient stories can make this material more engaging.

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2014Healthcare information on YouTube: A systematic review 2012YouTube for Information on Rheumatoid Arthritis — A Wakeup Call?2007YouTube as a Source of Information on Immunization: A Content Analysis 2013Is Content Really King? An Objective Analysis of the Public's Response to Medical Videos on YouTube 2010YouTube As a Source of Information on the H1N1 Influenza Pandemic 2012A Biography of the Pew Research Center’s Internet & American Life Project 2010YouTube as a Source of Information on Kidney Stone Disease 2014Are video sharing Web sites a useful source of information on hypertension?

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