Supporting Aging Caregivers and Adults With Developmental Disabilities in Future Planning

Tamar Heller · Joe Caldwell

157 citations0/0 files storedMental Retardation

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Family and Disability Support Research Disability Education and Employment Nursing care and research

Abstract

A peer support intervention was developed to support aging caregivers and adults with developmental disabilities in planning for the future. The intervention consisted of a legal/financial training session followed by five additional small-group workshops. Pretest and 1-year follow-up surveys were conducted with 29 families participating in the intervention and 19 control families. Outcome measures included future planning activities, caregiving appraisals, discussion of plans with individuals who have developmental disabilities, and choice-making of individuals with developmental disabilities. The intervention significantly contributed to families completing a letter of intent, taking action on residential planning, and developing a special needs trust. Caregiving burden significantly decreased for families in the intervention and daily choice-making of individuals with disabilities increased.

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References

1997Self-Determination and Positive Adult Outcomes: A Follow-up Study of Youth with Mental Retardation or Learning Disabilities 1991A Two-factor Model of Caregiving Appraisal and Psychological Well-Being 1998The Relationship Between Self-Determination and Quality of Life for Adults with Mental Retardation 2000Brothers and Sisters of Adults With Mental Retardation: Gendered Nature of the Sibling Relationship 1996Impact of person-centered later life planning training program for older adults with mental retardation

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2012Examining the support needs of ageing family carers in developing future plans for a relative with an intellectual disability 2013Issues in caregiving for older people with intellectual disabilities and their ageing family carers: a review and commentary 2008Families of children with disabilities: A review of literature and recommendations for interventions.2007Families of persons with Down syndrome: New perspectives, findings, and research and service needs 2012Support Needs of Siblings of People with Developmental Disabilities 2007Aging family caregivers: Policies and practices 2018Caregiving Roles of Siblings of Adults With Intellectual and Developmental Disabilities: A Systematic Review

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