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Why rare diseases are an important medical and social issue · Study

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ArticleWhy rare diseases are an important medical and social issue

Arrigo Schieppati2008

Article2008

Why rare diseases are an important medical and social issue

Arrigo Schieppati · Jan‐Inge Henter · Erica Daina · Anita C. Aperia

621 citations·0/0 files stored·The Lancet

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Pharmaceutical Economics and Policy Genomics and Rare Diseases Medical and Pharmaceutic Studies

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2018Alone in a Crowd? Parents of Children with Rare Diseases’ Experiences of Navigating the Healthcare System 2016The supportive care needs of parents with a child with a rare disease: results of an online survey 2010Emergence of orphan drugs in the United States: a quantitative assessment of the first 25 years 2019The Caregiving Experiences of Fathers and Mothers of Children With Rare Diseases in Italy: Challenges and Social Support Perceptions 2016Social/economic costs and health-related quality of life in patients with rare diseases in Europe 2015The Supportive Care Needs of Parents With a Child With a Rare Disease: A Qualitative Descriptive Study 2012Rare diseases, orphan drugs, and their regulation in Asia: Current status and future perspectives 2017Recommendations from the European Working Group for Value Assessment and Funding Processes in Rare Diseases (ORPH-VAL)

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Year2008

Typearticle

Published2008-06-01

VenueThe Lancet

ISSN-L0099-5355

Languageen

Citations621

Files0 public / 0

ShelfPharmaceutical Economics and Policy

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doi10.1016/s0140-6736(08)60872-7

openalex_workW1983965561

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