Article2003

The role of coping in maintaining the psychological well‐being of mothers of adults with intellectual disability and mental illness

Hea‐Won Kim · Jan Steven Greenberg · Marsha Mailick Seltzer · Marty Wyngaarden Krauss

172 citations0/0 files storedJournal of Intellectual Disability Research

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Family and Disability Support Research Down syndrome and intellectual disability research Family Caregiving in Mental Illness

Abstract

BACKGROUND: Mothers who have a child with intellectual disability (ID) or mental illness face a lifetime of caregiving responsibilities and challenges. The present study investigated changes over time in how mothers cope with the challenges of caring for an adult child with disabilities and the effects of changes in coping on maternal well-being. METHODS: A sample of 246 ageing mothers of adults with ID and 74 mothers of adults with mental illness was drawn from two parallel longitudinal studies of later-life caregiving. RESULTS: There was considerable variability at the individual level in the degree to which mothers changed over time in their use of problem-focused and emotion-focused coping strategies. For both groups, an increase in their use of emotion-focused coping led to declining levels of well-being. For the parents of adults with ID, an increase in their use of problem-focused coping resulted in a reduction in distress and an improvement in the quality of the relationship with their adult child. For the parents of adults with mental illness, an increase in the use of problem-focused coping had no effect on levels of distress, but led to an improved relationship with their adult child. CONCLUSIONS: The present study underscores the importance of coping in the lives of older mothers of adults with disabilities.

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References

1977The CES-D Scale 1985Stress, appraisal, and coping 2013Stress: Appraisal and Coping 1989Assessing coping strategies: A theoretically based approach.1978The Structure of Coping 1986Dynamics of a stressful encounter: Cognitive appraisal, coping, and encounter outcomes.1984Personal control and stress and coping processes: A theoretical analysis.1987Does coping help? A reexamination of the relation between coping and mental health.

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2019A systematic review of the association between coping strategies and quality of life among caregivers of children with chronic illness and/or disability 2014Predictors of distress and well‐being in parents of young children with developmental delays and disabilities: the importance of parent perceptions 2005Family Experiences Associated With a Child's Diagnosis of Fragile X or Down Syndrome: Evidence for Disruption and Resilience 2014Coping and Psychological Adjustment Among Mothers of Children with ASD: An Accelerated Longitudinal Study 2012The role of coping strategies in predicting change in parenting efficacy and depressive symptoms among mothers of adolescents with developmental disabilities

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