Family Supports and Resources for Parents of Children Who are Deaf or Hard of Hearing

Carla Wood Jackson

92 citations0/0 files storedAmerican annals of the deaf

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Hearing Impairment and Communication Hearing Loss and Rehabilitation Family and Disability Support Research

Abstract

The study examined family supports after identification of children's hearing loss. On a questionnaire, 456 respondents rated the importance of different aspects of family support, the quality of supports they experienced, and their preferences about informational resources. They verified the importance of informational resources, social-emotional support, and educational advocacy. Families expressed a preference for discussion with other parents of children with hearing loss over discussion with parents of children without hearing loss. The quality of support was rated higher by parents of children with cochlear implants than by parents of children with hearing aids. Top-ranked sources of support included individual professionals and service providers, other parents of children with hearing loss, family support organizations, and grandparents and extended-family members. Open-ended written responses indicated that parents desired additional opportunities to connect with mentors, role models, and other parents.

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2008Internet, Mail, and Mixed-Mode Surveys: The Tailored Design Method 2002Family-Centered Practices 1990Chronic parenting stress: Moderating versus mediating effects of social support.2000Family-Centered Early Intervention 1998Family Outcomes in Early Intervention: A Framework for Program Evaluation and Efficacy Research 2000Families, Professionals, and Exceptionality: Collaborating for Empowerment 2002Parenting Stress and Social Support in Hearing Mothers of Deaf and Hearing Children: A Longitudinal Study 2004Role of Spirituality and Religion in Family Quality of Life for Families of Children with Disabilities

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2014Parent-to-Parent Support for Parents With Children Who Are Deaf or Hard of Hearing: A Conceptual Framework 2017Mothers’ and fathers’ involvement in intervention programs for deaf and hard of hearing children 2022Multidimensional Family-Centred Early Intervention in Children with Hearing Loss: A Conceptual Model 2019Deaf adults in early intervention programs 2015A Summary of the Communication and Literacy Evidence-Based Practices for Students Who Are Deaf or Hard of Hearing, Visually Impaired, and Deafblind

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