Review2013

Disparities in Canadian Indigenous Health Research on Neurodevelopmental Disorders

39 citations0/0 files storedJournal of Developmental & Behavioral Pediatrics

No readable copy stored yet — this record is metadata only.

No open-access location is known for this record yet.

Literature note Cite in a project Citation map

Indigenous Health, Education, and Rights Autism Spectrum Disorder Research Down syndrome and intellectual disability research

Abstract

OBJECTIVE: To map the landscape of research on autism (ASD), cerebral palsy (CP), and fetal alcohol spectrum disorder (FASD) in Canadian Aboriginal children. METHOD: The authors used a detailed search strategy to identify and access publications on ASD, CP, and FASD involving Canadian Aboriginal children, families, and communities from online databases. They analyzed these materials for the type of research, stated objectives, methodologies, and the level of engagement of Aboriginal Peoples. RESULTS: The authors found a total of 52 reports published since 1981 relevant to Aboriginal children. Of these, 51 focused exclusively on FASD. They also found a near-complete failure to acknowledge community involvement in research decisions or dissemination of results in any of the publications. CONCLUSIONS: The focus on FASD in Aboriginal children and the absence of research on the other 2 major childhood disorders are at odds with rates of these disorders across Canadian children. The authors argue that this trend violates fundamental principles ensuring equitable representation of all children regardless of background in research and access to benefits of research in health care and perpetuates stigma in an already marginalized population.

Paper brief

Loading…

Cite this work

Citation unavailable for this work.

BibTeX RIS CSL-JSON

No public copy is stored for this record, so only the metadata is cited.

Citations in this library

Citation map →

Stored only when both papers are in the corpus — 39 citations exist upstream.

References

2013Diagnostic and Statistical Manual of Mental Disorders 2005The Embodiment of Inequity: Health Disparities in Aboriginal Canada 2000The Mental Health of Aboriginal Peoples: Transformations of Identity and Community 2004Ethics of Aboriginal Research 2010Aboriginal mothering, FASD prevention and the contestations of neoliberal citizenship 1998Aboriginal peoples in Canada : contemporary conflicts 2006Native Americans and Alcohol: Past, Present, and Future 2009Uncanny Scripts: Understanding Pharmaceutical Emplotment in the Aboriginal Context

Cited by

2023Imagining Neurodivergent Futures from the Belly of the Identity Machine: Neurodiversity, Biosociality, and Strategic Essentialism 2016Closing Gaps: Strength-Based Approaches to Research with Aboriginal Children with Neurodevelopmental Disorders 2019Colonialism in Early Education, Care, and Intervention: A Knowledge Synthesis 2018Stereotyping and Stigmatising Disability: A Content Analysis of Canadian Print News Media About Fetal Alcohol Spectrum Disorder 2022Autism and Autism Services with Indigenous Families and Children in the Settler-Colonial Context of Canada: A Critical Scoping Review

Explore the map →

Papers that cite the same references — the relational fallback while embeddings are still backfilling.

Imported from OpenAlex (CC0) — nothing here is generated.