Article1997

Bereavement and grief in adults with learning disabilities

Sheila C. Hollins · Alexander Esterhuyzen

152 citations0/0 files storedThe British Journal of Psychiatry

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Grief, Bereavement, and Mental Health Death, Funerary Practices, and Mourning Down syndrome and intellectual disability research

Abstract

BACKGROUND: This paper reports the results of the first systematic study of the reaction of people with learning disabilities to bereavement. METHOD: A sample of 50 parent-bereaved people with learning disabilities was compared with a matched control group of 50 non-bereaved people. A semi-structured bereavement questionnaire was used along with the following instruments: the Aberrant Behaviour Checklist (ABC), the Psychopathology Instrument for Mentally Retarded Adults (PIMRA) and the Life Events Checklist. RESULTS: Highly significant differences are demonstrated between bereaved and non-bereaved samples on both the total scores and most of the subscores of the ABC and PIMRA. Staff and carers did not usually attribute behaviour problems to the bereavement and its concomitant life events, nor was there a recognition of psychopathology due to bereavement. CONCLUSIONS: The impact in terms of psychiatric and behavioural morbidity of loss of a parent, with its concomitant life events, in adults with learning disabilities has been underestimated.

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References

1985The aberrant behavior checklist: a behavior rating scale for the assessment of treatment effects.1976Bereavement: Studies of grief in adult life 1973Bereavement: Studies of grief in adult life 1993Handbook of Bereavement 1983The psychopathology of handicap*

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