Article2010

Family expectations and transition experiences for young adults with severe disabilities: does syndrome matter?

88 citations0/0 files storedAdvances in Mental Health and Learning Disabilities

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Disability Education and Employment Down syndrome and intellectual disability research Family and Disability Support Research

Abstract

The differential impact of young adult diagnosis on families during the period of transition from school to adult life was examined. Participants were parents of 246 young adults with severe learning disability aged 18-26. Young adults were classified into four diagnostic groups: autism (N = 30), Down's syndrome (N = 68), cerebral palsy (N = 95) and an undifferentiated learning disability group (N = 53). Research questions pertained to parent expectations about their young adults' transition to living and working environments post high school. Parental satisfaction and worries were also assessed. The results indicated more community expectations of work for young adults with Down's syndrome, and more restrictive expectations for young adults with autism, including more expectations that young adults with autism would move out of the family home into a residential environment. Parents of young adults with autism also worried significantly more about various aspects of transition than other parent groups.

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References

2013Diagnostic and Statistical Manual of Mental Disorders, 5th Edition 2020Diagnostic and Statistical Manual of Mental Disorders 2004Psychological Well-Being and Coping in Mothers of Youths With Autism, Down Syndrome, orFragile X Syndrome 2005Preschool children with intellectual disability: syndrome specificity, behaviour problems, and maternal well‐being 2005Syndrome specificity and behavioural disorders in young adults with intellectual disability: cultural differences in family impact 1997Family Stress and Adjustment as Perceived by Parents of Children with Autism or Down Syndrome: Implications for Intervention 1992Consistent stress profiles in mothers of children with autism 1989Brief report: Psychological effects of parenting stress on parents of autistic children

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2015Family wellbeing of individuals with autism spectrum disorder: A scoping review 2013Psychometric properties of the P arenting S tress I ndex with parents of children with autistic disorder 2018To be understood: Transitioning to adult life for people with Autism Spectrum Disorder 2013Person‐centred reviews as a mechanism for planning the post‐school transition of young people with intellectual disability

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