Investigating the needs of carers in the area of eating disorders: development of the Carers' Needs Assessment Measure (CaNAM)

Rachel Haigh · Janet L. Treasure

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Eating Disorders and Behaviors Nutrition, Health and Food Behavior Family Caregiving in Mental Illness

Abstract

Abstract Objective: To develop an instrument that can be used to assess the needs of carers of people with an eating disorder and to perform a pilot test of this measure. Method: A focus group was held with 12 carers of people with anorexia nervosa (AN). A self‐report questionnaire, the Carers' Needs Assessment Measure (CaNAM), was developed from discussions of the focus group. A pilot test of the CaNAM was carried out with a sample of 28 carers of people with AN. Results: Carers of people with AN showed high levels of unmet needs in the domains of ‘Information about eating disorders’, ‘Support from other people/organizations’ and ‘Information received from general practitioners’. Discussion: Carers of people with AN show high levels of unmet needs. The dominant need was for practical and emotional help in dealing with the eating disorder. A revised version of the CaNAM is currently being tested with a larger sample of carers. Copyright © 2002 John Wiley & Sons, Ltd and Eating Disorders Association.

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References

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2007Caring for people with eating disorders: Factors associated with psychological distress and negative caregiving appraisals in carers of people with eating disorders 2012A Three‐phase Model of the Social Emotional Functioning in Eating Disorders 2009Development and validation of the Accommodation and Enabling Scale for Eating Disorders (AESED) for caregivers in eating disorders 2007Expressed emotion in eating disorders assessed via self‐report: An examination of factors associated with expressed emotion in carers of people with anorexia nervosa in comparison to control families

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