In Our Own Voice-Family Companion: Reducing Self-Stigma of Family Members of Persons With Serious Mental Illness

DEBORAH A. PERLICK · Ann Nelson · Kate Mattias · James Selzer · Carla B. Kalvin · Charles H. Wilber +3 more

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Family Caregiving in Mental Illness Mental Health Treatment and Access Mental Health and Patient Involvement

Abstract

OBJECTIVE: This article reports preliminary findings from a novel, family peer-based intervention designed to reduce self-stigma among family members of people with serious mental illness. METHODS: A total of 158 primary caregivers of patients with schizophrenia were recruited from a large urban mental health facility (93 caregivers) or from a family and consumer advocacy organization (65 caregivers). Caregivers (N=122) who reported they perceived at least a moderate level of mental illness-related stigma were evaluated on measures of self-stigma, withdrawal, secrecy, anxiety, and social comparison and randomly assigned to receive one of two, one-session group interventions: a peer-led intervention (In Our Own Voice-Family Companion [IOOV-FC]) designed to stimulate group discussion or a clinician-led family education session, which delivered information about mental illness in a structured, didactic format. IOOV-FC consisted of playing a videotape of family members who describe their experiences coping with stigma, which was followed by a discussion led by two family peers who modeled sharing their own experiences and facilitated group sharing. RESULTS: Of 24 family members and ten consumers, 96% rated the videotape above a predetermined acceptability threshold on a 19-item scale assessing cultural sensitivity, respect for different stakeholders, relevance of content, and technical quality (α=.92). Caregivers receiving IOOV-FC with low to moderate pretreatment anxiety reported a substantial reduction in self-stigma (effect size=.50) relative to those receiving clinician-led family education (p=.017) as well as significant reductions in secrecy (p=.031). CONCLUSIONS: Peer-led group interventions may be more effective in reducing family self-stigma than clinician-led education, at least for persons reporting experiencing low to moderate anxiety levels on a standard questionnaire

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1954A Theory of Social Comparison Processes 1989A Modified Labeling Theory Approach to Mental Disorders: An Empirical Assessment 1999Individual differences in social comparison: Development of a scale of social comparison orientation.2006The Self–Stigma of Mental Illness: Implications for Self–Esteem and Self–Efficacy 2001Stigma as a Barrier to Recovery: The Consequences of Stigma for the Self-Esteem of People With Mental Illnesses 2006Self-Stigma in People With Mental Illness 1998The Effects of Stigma on the Psychological Well-Being and Life Satisfaction of Persons with Mental Illness 2004Shame, blame, and contamination: A review of the impact of mental illness stigma on family members

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