Are families with adolescents and young adults with cerebral palsy the same as other families?

Joyce Magill‐Evans · Kerrie Pain · Robin Adkins · Marianne Spain Kratochvil

106 citations0/0 files storedDevelopmental Medicine & Child Neurology

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Family and Disability Support Research Cerebral Palsy and Movement Disorders Adolescent and Pediatric Healthcare

Abstract

This study compared adolescents with cerebral palsy (CP) and their families to adolescents without physical disabilities and their families as the child enters and leaves adolescence (age ranges 13 to 15 years and 19 to 23 years). Families of 90 individuals with CP (42 females, 48 males) and 75 individuals without physical disabilities (34 females, 41 males) participated. They completed the Family Assessment Device, Life Situation Survey, Multidimensional Scale of Perceived Social Support, and Future Questionnaire. There were few differences in family functioning, life satisfaction, or perceived social support between the groups. Expectations of young adults with CP and parents of both adolescents and young adults regarding future independence and success were lower than the expectations of the control group. While the group results emphasize similarities between families during the two stages of adolescence, individual families and individual family members report specific challenges.

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References

1988The Multidimensional Scale of Perceived Social Support 1977Toward an experimental ecology of human development.1990A psychometric study of the McMaster Family Assessment Device in psychiatric, medical, and nonclinical samples.1984Differences, Difficulties and Adaptation: Stress and Social Networks in Families with a Handicapped Child 1997Fathers and Mothers of School-Age Children With Developmental Disabilities: Parental Stress, Family Functioning, and Social Support 1992Service needs of families of children with severe physical disability 1991Families of young children with handicaps: parental stress and family functioning.1992Needs expressed by mothers and fathers of young children with disabilities.

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