Article1999

Adaptation of parents in relation to their 6‐month‐old infant’s type of disability

Diane Pelchat · Nicole Ricard · Bouchard Jm · MM Perreault · J‐F. Saucier · Marc Berthiaume +1 more

133 citations0/0 files storedChild Care Health and Development

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Family and Disability Support Research Down syndrome and intellectual disability research Infant Development and Preterm Care

Abstract

The adaptation of parents to a disabled infant was studied in relation to the type of disability presented by the baby. Participants were divided according to three types of disability and one control group: patents of infants with (1) Down's syndrome (DS), (2) congenital heart disease (CHD), (3) a cleft lip and/or palate (CLP), and (4) no disability (ND). The data were collected using a self-administered questionnaire given to each parent 6 months after the birth of their baby. The measures included parenting stress, stress appraisal, and psychological distress. Overall, the results indicate that parents of infants with DS and parents of infants with CHD report greater levels of parenting stress and psychological distress than parents of babies with CLP or non-disabled infants. Mothers were found to report greater levels of stress and distress overall, but differences across diagnostic groups were similar for mothers and fathers. The implications of the findings for theory and clinical intervention are discussed.

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References

1990Parenting Stress Index 1983The Family Stress Process 1990The stress appraisal measure (SAM): A multidimensional approach to cognitive appraisal 1976Further Validation of a Psychiatric Symptom Index in a Normal Population 1988Mothers and fathers of young developmentally disabled and nondisabled boys: Adaptation and spousal support.1984Differences, Difficulties and Adaptation: Stress and Social Networks in Families with a Handicapped Child 1975The Adaptation of Parents to the Birth of an Infant With a Congenital Malformation: A Hypothetical Model 1991Comparison of mothers' and fathers' perceptions of the effect of young children with and without disabilities.

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