A novel approach to sharing all available information from funded health research: the NIHR Journals Library

David N.M. Wright · Elaine Williams · Colin Bryce · Andrée le May · Ken Stein · Ruairidh Milne +1 more

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Academic Publishing and Open Access Research Data Management Practices Optics and Image Analysis

Abstract

BACKGROUND: Relevant information on health research must be made publicly available in an accurate, timely and accessible manner if evidence is to inform practice and benefit patient care. Failure to publish research information represents a significant waste of research funds. However, recent studies have demonstrated that non-publication and selective or biased reporting remains a significant problem. The role of online publications in rectifying these issues by providing open access to study information is increasingly recognised. OBJECTIVE: This paper details a novel approach to publishing research information developed by the National Institute for Health Research (NIHR), a major funder of health research in the United Kingdom. The NIHR has enhanced its Journals Library ( www.journalslibrary.nihr.ac.uk ), providing an online repository of information from research funded through five programmes. We describe how the NIHR Journals Library provides a 'thread' of relevant information for each study, including protocols, participant information sheets, data linkages, final reports, publications and diverse knowledge products. We also discuss the Library as a 'living' resource, one that is updated as each study progresses from inception to completion. Finally, we consider the implications of the Library for the NIHR, other journals and research teams submitting information. CONCLUSION: Openly publishing information from funded research in the NIHR Journals Library serves as a model of knowledge sharing, maximising return on investment and enhancing the usability and replicability of research findings for different evidence-user communities. The Library also supports wider 'research on research' ambitions, enabling users to interrogate the repository of NIHR-funded studies, enhancing the understanding of research commissioning, design, dissemination and impact. Video abstract: www.youtube.com/watch?v=8H03uxN_iTE .

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2009Avoidable waste in the production and reporting of research evidence 2004Empirical Evidence for Selective Reporting of Outcomes in Randomized Trials 2008Systematic Review of the Empirical Evidence of Study Publication Bias and Outcome Reporting Bias 2014Reducing waste from incomplete or unusable reports of biomedical research 2013Systematic Review of the Empirical Evidence of Study Publication Bias and Outcome Reporting Bias — An Updated Review 2009Comparison of Registered and Published Primary Outcomes in Randomized Controlled Trials 2012Does use of the CONSORT Statement impact the completeness of reporting of randomised controlled trials published in medical journals? A Cochrane reviewa 2008What is missing from descriptions of treatment in trials and reviews?

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